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I find life to be undefined,
Plans and hopes are undetermined,
Often, my thoughts are unwarranted,
My intentions remain unendorsed,
No outcomes are usually unassured!
Daily seizures are unprecedented…
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My brain? It cannot really be classified…
My bones & joints are crepitated,
In High Mood Horis, I’m almost contented,
Deep Depression Duncan often caprioled,
No one here, no chance of getting croodled,
Life is getting more circumscribed…
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There’s a hollowness when I get depressed,
I get sorry for myself, feel disadvantaged,
It may prompt wild things to be deliberated,
My thoughts get convoluted, disassembled,
A nasty DDD session can only be described…
As coffee that’s been decaffeinated.
I hate it, sickening until it’s departed!
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DDDD can’t be rectified or remedied,
It’s beyond being cured or rectified,
After it was analysed, I was repulsed,
Dementia inside cannot be resarciated,
I admit I felt forlorn, resigned…
The seizures & DDDD never retreated,
Another visit soon, to be reinvestigated,
I wonder if my brain can be reinstalled.
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In High Mood Horis, I can feel stimulated,
Although that sounds a little sugar-coated,
To wild dreams & fantasies I succumbed,
DDDD returns, I get mentally spifflicated,
The longer the session, the more scunnered,
Mentally drained, and feel shanghaied,
Writing this ode, I’ve been shemozzled…
The DDDD has suddenly sequestered,
Blessedly to uncaringness I succumbed!
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If Happy Horis stayed all day accommodated!
And DDDD could be disconnected, abdicated,
Then hopes & plans could be activated,
Then I could be far less aggravated!
And no doubt feel much less alienated,
But of course, DDDD can’t be amputated,
The damned DDD can’t even be ameliorated,
But I can get so frustrated and acerbated…
Realising that my needs can’t be assuaged,
Dreaming the Seizures may be assuaged
And Anne Gyna’s pains be abrogated!
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Daily, I’m self-loathed and vilipended,
Verbally, I’m self-verberated,
Also, I get self-vulnerated,
Once, when I left the hot tap running, I vomited,
And again, was self-vociferated,
I believed I should be vapulated,
Had my sanity been vitiated?
I kid myself I am capably viveured,
I’ve still often get self-verbally-violated,
The line below: Can I be acquitted and vindicated?
I’d gladly see Starmer vivisepultured!
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DDDDD WAS ON FOR MOST OF THE DAY.
Little got acheived.
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I found a few missing photos from yesterday’s internal memory of the Kodak Tim 2. Here they are.
Late evening shots from the kitchenette.
To the left
Centre
And the right
An earlier shot, with the moon crescent
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There’s not a lot on here. I’ve got to admit that
really got to me today. I’m so sorry, but I was pathetically mopping about in between the lousy seizures and just couldn’t muster any enthusiasm until late afternoon when
visited me. He didn’t stay long, and it was soon back to sitting, staring at what might as well have been a blank screen.
But with an overfull catheter bag, too!
The Carer told me when they arrived. An hour later, and
returned and is still with me as I type away now on this computer. I spent hours on today’s ode. The reason? I’ll tell yers, Haha!Â
Who usually comes on bad around 16:00hrs or so, blurred things at 14:00hrs.
Then, amazingly, at 15:00 or so, the vision came back quite suddenly. So I’m getting on with it, but naturally, I expect the return on
or
at any time now. Omlt just typed this, and electric shocks shot up my right leg,
followed by his ‘ailment-in-arms’ partner
.
No shaving cuts today, yet. I didn’t have one! Dirty boy!
As I was about to go in the wet room. Miserably, I gave up the fight and, feeling sorry for myself, sat down and fell asleep! I was woken up by
who was in cahouts with DDD and Seizure Sandra. The daft things, I guess!
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Only photos to trigger the memory from here on.
I’m not sure this is today’s shot of the waste bags. I may have got it mixed up and deleted the wrong one.
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I was merrily grafting away here. And I got that fearful, sudden-sinking feeling; I thought I had left the hot tap running again. I moved limpingly to the kitchen, and the catheter contraption fell down to almost my ankle! Arrgh!
The tug on Little Inchy was as near to excruciating as I wanted it to be. At least the tap was not running – but I’d left the fridge door open!
Now, the problems multiplied.
I had a mini-seizure as I was checking the catheter and tried to pull it up quickly to relieve the pain. Lost my balance and reached out to grab the corner of the counter, and unfortunately, I missed it due to the intense sunshine blasting through the window! I now have even more scars on the tight leg ulcer, and it bled a tiny bit as I caught it on the trolley.
On the bright side, there usually is one if I look hard enough -at least I stayed, as wobbly as they were, on my feet.
Now I had water running out of the fridge, blood trickling
down my leg, a mess to sort out, and the telephone started ringing!
I abandoned the mess I created and got to the landline in time. Sister Jane talked about tonight’s Forest vs. Ipswich F.A. Cup game. She and Pete are going to it. (I watched it later; it’s still on the box, in extra time).
Then I went back to the kitchenette, and it wasn’t until then that
I realised I’d just soaked myself in the cold water I’d poured into the bowl and dropped it! Wet dressing gown, legs, and feet. Which, of course, made the messed-up area even larger to clean up now! DDDD went deep this time. I can’t recall everything I had to sort out. It must have taken me well over an hour and a half. Washing and drying inside the fridge and throwing away some soaked foods. I changed my shirt and protection pants. Putting my wet slippers, shirt & dressing
gown into the laundry bag. Then, I got fresh slippers, a shirt and a dressing gown. I still had some cleaning up I’d missed, and the landline rang again.
All I could hear was background noise. For anyone who knows me, to ring this late worried me. I thought it might be my sweetheart, Frank’s Jenny, or sister Jane. Jenny might have been in a pickle with something, like Jane. I’d got Jane’s number on auto dial on the landline, so I rang her first; as I did, I realised she would be at the football match. No surprise she didn’t answer. Then I rang Jenny. I know it was late, but she might have needed support or help, so I rang. She told me she was okay, and that was wonderful to hear. She spoke of the window cleaner situation at the flats and asked about the medical problem, and I told her I was waiting for Matron Jackie to visit me to explain about the seizures. Bless her for her caring nature ♥. Then Jane rang back. I was in total disarray. So many things were happening simultaneously, and I had little, if any, control over any of them.
Anne Gyna and
both turned their attentions on me at the same time.
I had to give up sorting anything out. Concentration and confusion took over. I’ll try to finish this before I give up and get my head down. I’m so tired and weary now. Even
joined in the mayhem.
I’m not interested in eating at all. In the morning, I must ask the caregiver to redo/repair/replace the catheter for me.Â
I’ll get the out-of-sync photos on.
Aha, letters delivered.
Carer allowance cut?
It’s still unopened.
The same dosages.
I remembered and made time to update the c1970s clock-calender at 17:10hrs it seemed. Hehe!
Results of the Accifauxpas over the last two days!
I’ve eaten nothing all day and am so tired. I think I’ll have some biscuits and get my head down.
Another busy day is coming up tomorrow.
Just what I need after today’s farcicalness!
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A Thought: Please make tomorrow less stressful. PLEASE!
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I’ve got
back with me again, now. Grumph!
TTFN.
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Night pouch.
A bit of rain overnight.
Bless him!
The petrichor smell is beautiful.
Then, when the new child monitors were delivered, please make a note of that, eBay aficionados. DELIVERED at the time specified, not leaving me still waiting in vain hope and unaware of when or if they will even get here at all! Grumph!
I struggle to read the instructions, even with the new glasses on my head. And Peripheral Neuropathy Pete was not letting me grip the parts I had to open. I rang 
The two of them soon got the thing working for me. ♥
Late shots were taken over an hour or so.
I prepped and served up the meal.