– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
MONDAY
BLOOD WORK.
From the Warfarin Nurse.
– – – – – – – – – – – – – – – – – – – – –
Dodgy BP on second mock run.
over 180, did not ring 111.
– – – – – – – – – – – – – – – – – – – – –
ICC Carers phoned in reply to my request to stop the longer visits, due to their ineffectiveness and financial limitations. I was told that Ejaz would be doing all the long calls this week; the days would be changed. No mention of stopping them? No mention of the times they did not come, and I was still charged. At the time, I was just glad that he would be serving me once again.
The rest of the day was mental mayhem.
I was so far behind with the blogs and medical things, and this made it harder to recall. There were some notes on Monday’s page on the pad, but written so poorly I had to guess at some bits, but could only decipher about 15% of 
it. It is now Tuesday morning, and I’m only just starting to update this blog. I’ll see what I can get from my notepad. Fingers crossed. Self-Note: I must write larger letters!
Argh! I woke up to find that the new nocturnal bag had leaked all over the carpet! Took ages and a lot of back pain to sort it out. ICC phone call (above).
– – – – – – – – – – – – – – – – – – – – – – –
Carer Ejaz did the long visit. A great help in sorting things as usual. As I stood up to get paperwork, my dizziness came on, and I fell over into the chair, as the knee gave way. Hitting my coccyx and head at the same time. Struggled around in the chair so as not to fall out-of-it. Ejaz was in full control and was a blessing.
(Oddly, I recall all this bit)
A day of Catheter shortage, and Ejaz called for supplies for me. All the rest of the page? Unreadable.
– – – – – – – – – – – – – – – – – – – – –
Sorry, I made a mess of this.
==========================================
TUESDAY
– – – – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – – – –
‘Orribly Oracled Ode
– – – – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – – – –
04:00hrs, I woke up with a very painful coccyx. Much worse than just after I hit it on the armchair on a Whoopsiedangleplop Accifauxpas, yesterday.
I decided, well, very nearly, that I had to get up earlier today. Remembering my last two mornings, which took ages for me to stir and to get up and were filled with many droppings-offs. When I actually tried to get up, the agony from the coccyx bone was so bad, it took such a lot of gentle manoeuvring to ease the pain; it was 06:30hrs!
But I dropped off! This was followed by at least a dozen more trips back into the land of nod. Once on my plates of meat, the agony had turned to a little bit of discomfort.
For the rest of the day, it remained the same. It only stung me badly when I stood up or sat down. Curious about this, I took off the night Catheter bag and got the computer on to ask Google about the coccyx bone. Fearing another injury that I couldn’t afford trips to the A&E anymore, I gave the details and got this reply.
“A bruised tailbone causes lower back pain, swelling, and tenderness that typically heals on its own within four to eight weeks. (Good to read) Relief comes from using an ice pack wrapped in a cloth, taking over-the-counter pain medicine like ibuprofen, and sitting on a special ring or wedge cushion.” An ice pack? Would that mean me going shopping for some? I can’t afford a Carer to go with me, so that is out. Ibuprofen. With the arthritis being so bad, I’m already using my max-allowed three times a day in liquid form to control arthritis in the fractured knee & wrist, lower back, neck, and right shoulder and arm.
But I was pleased it would dissipate later.
– – – – – – – – – – – – – – – – – – – – – – –
While on the computer, I got emails coming in. One got to me and started self-lambasting and swearing at myself,
Your order will be delivered today at…
The times I do this! People say, well don’t order any then!
Thanks to a mixture of the TBI, Depression, frustration & premorbid cognitive impairment, maybe helped along by
Concussion: A mild hit to the head can disrupt brain work and cause short-term confusion or memory loss. Traumatic Brain Injury (TBI): Hard blows or accidents damage brain tissue, making it hard to form new memories. Stroke: Blocked blood flow or a silent stroke harms brain cells and leads to sudden or slow memory decline; I’ve had them all!
Depression and Anxiety: Emotional stress and low mood make it hard to focus and remember daily details. (Oh, yes!) Vitamin Deficiencies: Low levels of vitamin B12 hurt nerve cells and cause forgetfulness. (I’m on B12 vitamin tablets, but they are not given to me by the Doctor; a Nurse brought some. The carers will not issue them or remind me to take them; I forget. Of course, they must be out of date by now. Sleep Apnea: Bad sleep deprives the brain of oxygen and harms recall.
I’ve had or got them all! I’m just greedy for agony!
– – – – – – – – – – – – – – – – – – – – – – –
The sun came out; temperature got up to 29°c, later.
– – – – – – – – – – – – – – – – – – – – – – –
Off to the Porcelain Throne now;
Core-Blooming-Blimey! Phooey!
– – – – – – – – – – – – – – – – – – – – – – –
The late sky clouds…
I swear they spoke to me…
Full of awesome beauty,
Fearing mankinds complacency!
– – – – – – – – – – – – – – – – – – – – – – –
Reading my notes, with difficultly…
Writing too small, you see
– – – – – – – – – – – – – – – – – – – – – – –
Meal of the day,
Beetroot, Stilton cheese, tomatoes,
smoked mackerel, mini gherkins,
pickled onions, soft sourdough
bread with no-butter, butter.
– – – – – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
Whoops, missed these last night.
BP Check results. When the Carer left, I called 111 to ask advice on these high readings. According to the list the nurse made me, so high should have been a 999 call.
Early view
Feet with the longest toenails ever
Bit of fat around the ankles.
Potatoes, Curlies & Stilton, with a mini pork pie.
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
, has not visited for ages.
acidy tastes in my throat, so no seizures had. 
to the recliner to record the reading. You’ll notice in the photo above that the urine in it was bright and orangy. Minutes later as urine began to flow… Scarily, it was mostly blood!
I got a giant potato in the crock-out while waiting, and cleaned up a bit, and did the teggies. When I got back to the room, I noticed the urine was now much lighter and much less bloody. Another flipping mystery! But the joy of not having to go to the A&E briefly visited me. Great!
Checked the overcooked potato in the crockpot. 
I went onto the balcony; the heat hit me when I opened the door to take some cloud and sky shots. No signs of rain amongst them today.
yellow and brown out there.
The end of the car park, which usually had wet mud slides from the Woodthorpe Park behind us, looked bone-dry. The lawn bit is now 80% destroyed. Sad! I imagine the wildfires may spread to more areas when this cooler spell returns to hot weather. 
– – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
Newest outbreak: An area of about 600m by 200m (1,968ft by 656ft) was alight in Abbot’s Wood
: As I blurbed back into faux-life. To the sound and sensation of what felt like a bubbling evacuation doing its best to escape. Although this was a semi-panic moment, I recognised the foul acidic after-seizure tasting reflux on its way up through my throat, mouth and nasals. Meaning my balance was not so good, but I used all speed available to get up and hasten to the wet room. Before I’d left the room, I realised that the evacuation was gaining impetus, and an aroma, if that’s the word, escaped and permeated the entire flat. Most fortunately, the WC door was only 
about five paces from where I stood. Which equates to about ten of my shuffles. 
I had to get a dressing gown on quickly, to get down to let him in. But, no, by the time I got to the lift, the driver was getting out-of-it. A sociable chap
There’s a moral here. Somewhere?
I got the food away, and hoovered the flat. Then I emptied all the waste bins into one big one. In what turned into a vain hope, that the Carer would trip over it and take it to the waste disposal tunnel. Hahaha! 
♬ Oh, Susana ♬ chimed from the doorbell; in walked a Carer. Not even noticing the waste bag. Med’s issued.
glare! When we arrived at the store, he’d mellowed and took an interest and helped me get a selection of foods. We got some Soda water, Hungarian. Couldn’t find the French cheese I got last week, but he chose one for me from the other blue-veined cheeses. We investigated their wonderful deli-meats counter; they had none of the pork I wanted, so the Carer took me to the prepacked meats and found some smoked belly pork that tickled my fancy. The veg they had was not fresh, but I got a carrot and a bag of potatoes, the best of a bad batch, with help from the Carer. I also got a mini-sized thick-coated lemon madeira cake, well, two of them. One left now.
I added some carrot, sliced very thin so it would cook quicker. After all that, I cut up spuds thin again. Cut some more yellow tomatoes, onion, water chestnuts, sweetcorn, chestnut mushrooms, left on a low light.
, and my eyes were worse than ever. (Cataract). I have to keep trying on and changing to a pair that might be easier.
The vegetable stew/soup was served up; not a lot. Much of it seemed to have gone and evaporated? What did I do wrong in the cooking process? No idea! However, it tasted rather good. Taste Rating: 8.8/10.
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
My last photographic adventure,
– – – – – – – – – – – – – – – – – – – – –
sadly shrinking minuscule, battered mini-pinkie… The embarrassment, frustrations, and a mega-depression to cope with…
Sourdough breag, bacon, fresh peas,
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
HUH! Could I find the Virgin Media remote control that I’d used five minutes earlier to turn on the television? NO!
Causing some bleeding from 
Another miracle: I found that 
the TV was on! A Sherlock Holmes Mode was engaged; to try to work out what had gone on, and was going on! I did my best to work it out logically. To put the TV on, I have to press the remote control each time. I was in bed… Ah, I rummaged through the bedding and found it. Leaving another puzzle to be sorted. I think, erm… How, when using it for the first time, did I manage to transport it to the bed, when I did not find it or go near the bed after losing it? I think I’ve confused myself now.
would come back on again.
I’m feeling bad this morning, but with a twinge of accepting that things are not going to get any better. Where can I get help from?
feeling even lower now. And feeling a chunk pathetic, to say the least.
Second caller, Ahram arrived.
I went into the wet room with a view to getting a shave and wash. guess what?
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
Talk about falling to sleep unexpectedly!
Hallo! Movements from the innards, I think things are moving. Then I moved in the direction of the wet room, got in, got settled, and realised this was going to be a long, painful and bloody battle urging on the what felt like concrete into an evacational position. 
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – –
and started without any asking or prompting. He Phorpained my back, neck, and shoulders after using the remover spray.
I returned to the wet room to find I’d left the hot tap running and now, potentially had the cleanest wet room floor than ever before. I’d just put soap powder and bleach in the sink to soak the flannels, then the water spilt over onto the deck!
PREPARING, TRAVELLING TO,
Then all done, the first lady collected us, and we went back to the first treatment room. 
put in. 
TASTE RATING: 7.1/10
– – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – –
Off to the wet room to utilise the Porcelain Throne. The evacuation? 
tacky, smelly deposits from the tacky bowl. I remembered to reset the Calendar clock.
Carer arrived. I’d had a wash, teggies cleaned, and shave already done. Got my Protection Pants on, and had cleaned and barrier creamed my privates. All in an effort not to keep the lad waiting when he arrived. Called at the Warden’s office to tell her about the Bank Statements’ arrival. Forgot to ask about toenail cutter, though. I’ll ask on the way back.
with no-butter, butter. and sliced red tomatoes. Along with yellow cherry toms on the side.
and Tiryaki sauce on the spuds. That is, of course, if I don’t fall asleep. The little trip out to the shop has left me in a thoroughly tired-put condition. Hehe!
The first one as we approached the Azanz Continental Food Store.
choose and purchase. The lower snap was taken on our was back up the incline to catch the 40 bus.
– – – – – – – – – – – – – – – – – – – – – – – –
We got in the flat, and the lad was off in a couple of minutes of giving me the medication, and I got the food put away and planned today’s meal as I did so. The bread rolls are a little hard in places for Toothache Tiffany to cope with. I’ll just take care and suck them a little first. Hahaha! 
TASTE RATING: 8.3/10
– – – – – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – –
eyesight, and loss of balance were joined by a sore throat and a tickly cough. I’m sure it’s just a chill.
Medications were given. Short on Phorpain Gel & Barrier Cream. So, I asked the Carer to make sure some are ordered, the same as I asked him on Friday & Sunday, as we are down to the last tubes of barrier cream and a pot of scar cleaner. No reply again. Asking him if it had been ordered prompted an answer: “I don’t know!”
I was certainly feeling more at ease with the balance problems now. But the various forms of Arthritis were all words. 
The stomach started rumbling again. But nothing as bad as it has been for the last two days. No Accifauxa
The agency worker arrived to take the Warfarin INR blood sample.
It used to load a Pica screen, followed by a Dell screen, first, and then within ten minutes, it got through to opening Windows. Today, nine tries were needed.
earlier. No answer there either. 
I took a snap of the pretty, gorgeous-looking sky from the kitchenette window.
I snapped the houses in front of the flats, and the phone rang. I thought it might be the Warden, Angel Julie, or the NCC regarding the bank statements. Wrong number!
Fish sticks, a can of peas, Tiriyaki sauce-
– – – – – – – – – – – – – – – – – – – – – – – –
– – – – – – – – – – – – – – – – – – – – – – – –