Functional Neurological Disorder

Inadvisability Inchy: Fri 29 Mar 2024

/ Inchie / 4 Comments

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I made a deliberate mistake in this Ode; Ahem!
I wrote Further, instead of another word. Would
anyone like to guess what it should have been?
Deliberate mistake… I am a fibber!
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Much more out-of-it than with-it today.
Moments for sheer frustration, littered with strange, weird, eerie, unaccountable moments of ‘Soditisms’.
During these spasms, I was so high that nothing seemed to bother me in the least. But, they were short and rare and were usually followed by a Depression full of self-loathing, then a realisation that I am to blame for my past guilt. Then, the circle would start again.
I think I’ve mentioned these to the Doctor, but I’m not sure. Maybe not; I’ve not seen her for many months.
On the bright side, the throughout the day, added up to only four!
I left the hot water tap (faucet) running again and burnt the food in the oven. The eyes are terrible nowadays. Any distance and things seem to have another image above themselves. Like a shadow, but clear. I’m looking now through the balcony window, and all the houses look like they have two roofs.
The catheter is a lot less painful than yesterday, mind you. My coughing has also calmed down compared to last night. I’ve walked into nothing. Fair do’s, I’ve dropped the cutlery, saucepan, washing up bottle, picker-upperer, tablets and my pen (four times).
So, all in all, a typical day.
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Night pouch.

Medicationings.

My ankles look fine.

The first emptying of the day bag.

Opening the balcony windows.

Over the next five hours, the views remained similar.
I kept nipping out to take a view or two.
Between making a mess of this blog.
Gorgeous!
Wonderful.
Magnificent.
Wunderbar!

I was busying away and getting a little done.
Caregiver calls only confused me. After they left, I found it nearly impossible at times to get back to what I was working on, often veering off to the wrong project and getting deeper into a mind-muddle. Memory-Blanks were rampant. For some reason, I did not keep up with the memory notes on the pad. Now, so long later (Saturday A.M. started on this section), the photos help prompt me a little. Not many of them, either. Any slight disturbance, change whatever, and I was lost again. Sorry about this

Fifth Catheter Bag Emptying (I think).

Gave up computing. I was in a long-lasting period of haziness. But can recall Carer Christopher arriving.
Cheeky-Faced Chris. Hehe!
While talking, I remembered I’d left the sausages cooking in the oven… yet again!
I hastened hobblingly to the kitchen.
Got the mini sausages, which were not burnt too much, into the pan of BBQ beans and tomato sauce with chunky vegetables and stirred while rewarding them,
I ate up most of them with two brown baguettes.

I took this night view and got settled into the itch-creating, bruise-giving, catheter-tube-tugging, crumb-decorated from my nocturnal nibbling, God-awfully uncomfortable, cringingly grotty, no longer working, dirty beige, anti-sleep designed, c1966, second-hand bought for £300 ten years ago from the charity shop, recliner, in search of Sweet Morpheus. But the mind would not let me rest enough to capture the bliss of sleep. Immediately started an attack of lambasting, self-hating, repeating so many things, wrong choices I’d made over the tears. Even an occasion that took place when I was just an ankle-biter, which I was not proud about doing… it was horrible being forced to listen to myself, listing and bringing back to mind the shame and self-disgust from the time all those so many years ago.
As I tossed and twisted, I felt the Catheter tube pulling on Little Inchie. I 
realised then that I had not attached the Nocturnal Pouch yet. So, I did!

By the time I’d fumbled about to get the bags linked, my & both went off simultaneously. Miraculously, bearing in mind the viciousness of the leg dance, I didn’t go over or tumble. I’ve not had a fall all week. . I may regret saying this later, Haha!

TTFNski each!

Impaired Inchy: Tuesday 19th March 2024

/ Inchie / 3 Comments

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I got this above from the web, but it’s not my work. Great!
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05:45hrs; I was up sharpishly due to the need of the  . That took me instead a long time to evacuate. I got visions of my body being split in half at one point, lengthwise, of course. Hehehe! Things got stuck part-way out, and the pain almost made me shout out! Hahaha! With the misleading sense and rumbling innards sending me rushing to the wet room, I didn’t have time to remove the nocturnal catheter pouch.

I exited the wet room. I’ve been in it that long; I think I need another shave! I took this shot of the blue morning’s incredible view.

The ankles were a smidgen inflamed this morning. Still handing out the odd few sort of typical DC shocks. . The right leg is more persistent than the left.

I sorted the waste bags out and found that yesterday had not been taken yet. I’ll try to remember to ask whichever Carer calls later. 
The laundry had not been returned. I forgot about asking about the bin bags (Wednesday morning, there were six bags), but I did tell two carers about the laundry not being returned. I can’t take them myself, as it is far too early, so I forget! 
I found this, whatever it is, on the SD card. I wonder what it was. I hope it wasn’t urgent.

Carer Richard arrived. I forgot to ask him to get my socks back on. Tsk! But I did remember to take the Vitamin B17 tablet.

I asked Carer Kara to put them on for me; Kara did this on the midday call. ♥ And I was a lot warmer afterwards. Haha!

The bladder rapidly filling up the . The urine looked a little darker, which was unusual for this time of the day.

I got a call on the new landline. My beloved, heart-throbbing Phlebotomy nurse, Hristina, was from the Deep Vein Thrombosis, Warfarin INR unit. She told me she would be coming to see me and take some blood tomorrow between 09:00 and 1100. ♥ A most welcome visitor!

I took a photo of the most deliciously looking sky and wonderful clouds from the kitchenette window. 
I found this one appealing. Is that the right word?

I’d been doing so well with the CorelDrawing. I made graphics and News Snippets and went to make a brew.
I don’t know what caused it, but I suddenly felt drained and washed out. My heavy eyes,  spirit, ID, Alto-Ego, loins, innards, joints, and brain insisted that I stop everything and get some sleep, so I tried to.
I got down in the itch-creating, bruise-giving, catheter-tube-tugging, crumb-decorated from my nocturnal nibbling, God-awfully uncomfortable, cringingly grotty, no longer working, dirty beige, anti-sleep designed, c1966, second-hand bought for £300 ten years ago from the charity shop, recliner. My very being was desperate for sleep, but could I get to sleep? No! Despite my feeling so tired!
The well-used ploy of putting the TV on, which usually sends me off into Sweet Morpheus Land when the adverts come on, did not work this time. I just sat there, watching the TV for hours, and not seeing it, if you know what I mean. The brain talking away to me, asking why I am not sleeping when my body demands it! Well, I didn’t know. The eyelids drooped, but I remained sleepless.
This was so unnatural and surreal. I decided to get into the bed, turn off all the lights, get comfy, and nod off. Which I did, desperate to get some kip!
I got settled, and the resident above me clattered about. It was not his fault, but judging by the type of noise, I think he had dropped his Zimmer or walking stick. It took me ten minutes or so, but I drifted off to sleep.
Only for me to be unceremoniously woken by the repetitious . One single twinge; always followed by another within five minutes or so. I put up with it for an hour or so, then gave up and got up.
I caught the moon smiling at me through the oddly misty-looking night and photographed it. It was not a bad effort on the first one.
Then, I managed to take another decent one. I was beginning to approach delving into class one, super grade A .
Ah, back to my usual photographicalisationing skills on this third one, an attempted close-up frame. I thought it would be a good one, but I found out in the morning when I retrieved these from the SD card what a mess I made of it. Hey-Ho!

Tonight, I had a canned meal. A tin of potatoes, stewed steak, and chunky vegetable soup were warmed up in a saucepan. I’d got some Milk Roll bread to dunk in it. I put it on low heat and meandered back to the £300 second-hand shop purchased, c1966, welt-causing, uncomfortable, not-working, itch-inspirational, crumb-containing recliner. 
THEN I FELL ASLEEP! 
Just when I didn’t want to nod off, I did! There are no photos of the burnt meal and saucepan cause I was furious with myself! I dished the contents and cleaned the saucepan, floor and stove. I’m sorry I sat down again, now!

I got more canned food out of the cupboard and, more or less, made the same meal again, standing by it all the time I prepared it to avoid having another. I got settled again, this time back in the recliner to avoid. Yet again, could I get back to sleep? No! I gave up and got up. After one 30-minute burst of bliss, called sleep all day and night, it was not good! 

This bodes badly for tomorrow’s energy requirements.

I can’t see myself staying awake much longer.

TT(Yawn)FN

Grunchy Inchy: Friday 15th March 2024

/ Inchie / 4 Comments

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All-over-the-placidness, lack of concentration, and mind wandering off more than staying with me were similar to yesterday. Rampant! I have lost the notepad with the reminders of the day’s events.
There is much the sameness, I suppose. Thank heavens I got the above selection sorted early because I could not have done it in the state I was in later on.
Things may or may not improve mentally or physically, but ‘It ain’t necessarily so!’
So, this will be short on detailed info, as the seizures and mind-blanks started later on. Sorry.
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04:00hrs: The brain stuttered awake… well, mostly. How I got the glow onto this snap, I don’t know!

Veering towards the Trotsky Terence level.
The feet & tootsies looked better.
The medicationalisationings followed.
MedPhorpainThe shaving went well; there were only a few minor nicks. No bother.

Got in a tangle with the .

I went to the kitchen and enjoyed taking these snaps of these morning views.
The last one turned involuntarily into a work of art, or I was interfered with . Hehe! Does it look like a radar photo of an airport and city?

I got the computer on and started updating and getting photos onto CorelDraw and WordPress.

Another oddly-hued photo?

Contrails in the beautiful sky.

Taking an automated wee-wee. Hahaha!

Clouds to the left.
Clouds to the right (Of the kitchen window)

I got further muddled and had to make many amendments and corrections. Then, as if by magic, I found myself in the spare room, apparently searching for something. I didn’t find out what I was looking for, but I had a scout around in case I saw whatever it was, and it triggered the brain into action. It didn’t.

Later, when I went to investigate what to have for the daily meal, I had this wonderful view to photograph. This one is rather special. Gorgeous!

It could be Putin in heaven, I thought.
But plenty of others to pick from. Hehe!

A lot of blanks today.

But I did get the nosh pepped, cooked & photographed.

TTFN

Incapable Inchy: Thursday 14th March 2024

/ Inchie / 2 Comments

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I’m thinking of writing a blog about “How to Get Nothing Done, but find it needs amending or correcting, then run out of time doing it!” Yes, I reached a new low or high today in brain-befuddledness. Overlooking the obvious, missing the intentions or inclinations of my own tormented mind. I’ve never been so busy getting nothing done… well, done satisfactorily, or to a semi-acceptably state, competently, effectively. But conditionally. 
My senses and intentions are in remission.

02:30hrs: Better shade.

High morning sky.
Lower down.
Wonky, wobbly view.

First…

AARGH! .
I’ve done it again!
I left the Dang tap (faucet) running last night. There is no hot water for a shower or shave. Spit and grumps!

I put the kettle on and had to return to the Throne!
It gets better! Hehe!

Made a brew of Glengettie. Of course, I started writing a blog post and forgot all about tea. Huh!

A third visit to the bog!
porc tttWhere’s it coming from?

Carer Chris (took the laundry down) and then Carer Kara called. Both were in a rush, up to the neck in it, methinks. Kara looked at the whiteboard and checked the Catheter for me.

MIND BLANK or SEIZURE
A whopper, too!
When I came around, it was obvious that I had been working on the computer. To my amazement, I’d posted the Wednesday Post off; I hope I finished it first. The scribbled notes I’d scrawled meant nothing to me. I was aware of things because I went to check the cooker and taps. The taps were off, the kettle was cold, and no hobs or ovens were left on. At this moment, I looked out at the view from the balcony window.

My eyesight was worse than ever at long distances today. Every house seemed to have two roofs, and they were both moving independently of each other, according to my Glaucoma’s eyes, anyway.

The day bag dropped down the leg, so I must have been drinking well enough while half out of it?

I did notice the nibble box had been well-raided. Haha!.
Well, that’s what it’s there for.

I realised I’d not sent the blog email notification, so I did.
For an unknown reason, Googlemail would not let me import any pictures (and still didn’t on Friday?). Luckily, they went in when I copied and pasted, which made the job messy and protracted.

Can you believe this?.
And was bleeding.
I seemed and cleaned things up. After being up so early, when I returned to the computer, I decided not to continue. Then I realised that the evening carer, Chris, must have been. Could I recall it? Nope! I checked the log book, and he had been.

Despite having been up for about 21 hours, and there must be chunks of the day went off into the ether, I didn’t feel too tired, physically; then again, I’ve not nowt physical, have I?

Time to get summat to eat.
Garden peas, potato cakes and caramelised little pork sausages. These were eaten with bits of the baguette wrapped around each one and dipped in the new Heinz tomato ketchup with pickle!

Got the bed ready to receive the mini-elephantine body and decided to have a bag of chip sticks to round off the meal. I checked the taps and heating and got down in the itch-creating, bruise-giving, catheter-tube-tugging, crumb-decorated from my nocturnal nibbling, God-awfully uncomfortable, cringingly-grotty, no longer working, dirty beige, anti-sleep designed, c1966, second-hand bought for £300, ten years ago from the charity shop, recliner, to eat the treats.
Zzz!

Throughout the next three hours, I did not move from the recliner; I just spent the time getting oh-so-regular. I gave up and got up at 04:00 hrs. I decided to finish the stand-up ablutions. It was far too early to use the shower, and the noise would wake up the tenants living below. I’m coughing and sneezing a bit now. Tsk!

Cheers!

Inchy Irked: Monday 11th March 2024 Whoopsie Accifauxpas Tumble

/ Inchie / 4 Comments

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Monday was so meddling,
Scaring, frustrating & muddling,
Constant Whoopsiedangleplopping.
My computer was malfunctioning,
I feared the end of my computing!
With the Blue Screen of death appearing!
Fell over, when waste bin manoeuvering,
Many an error and mistake making,
Mental malfunctions marauding,
My forehead acne & eczema are cohabiting! 
I just thought these were worth mentioning.
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05:15hrs: I woke, got up and was determined to get the done straight away, so I had the time to get them finished before any Carer arrived. The night sharing , and bursting-put Sneezes. I nodded off again every time, but it seemed minutes later, one or the other was back to wake me up. Tsk!The Catheter night pouch didn’t have much content. However, it was a much better colour today.

I collected and hobbled off to the wet room.
Yet the innards seemed to be gurgling?

I tried the crossword book while waiting for any action to begin from the rear end. None did! 
As I rose from the WC…
The legs looked a little misshapen, and I felt that and her lesions were creeping up the legs more today. The knees were both slightly bloated. But below them, that part of both legs had ballooned! (Out of picture)
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After shaving and washing, it was apparent that my forehead and neck were much more virile than usual. As it seemed, was the postmarks, mini-boil, and drooping eyes. Hehe!
This photo left me bamboozled. I must have taken it in the wet room because it was on the SD card between the one above the face and the legs below.
I took this just before I put on my dressing gown to leave the wet room. Did they look more inflamed than earlier? I thought so. Both cartilages and knees’ were both carrying to much flesh for my liking. 

arrived. He looked a smidgeon better than the last time I saw him. He medicated me, but I forgot to ask him to put on the socks. He checked the prescription medical draw stock and recorded it. He took the laundry down for me; bless him.

Still dark out there, but the mist is lifting, methinks.

In earnest, I started the Sunday blog. It was slow going, but progress was made without too many errors until I realised that Grammarly was not picking them up! It took me a long time to get Grammarly working again, and I still have no idea how or what I did, but it started again. Then, I had the pleasure of correcting and amending the 78 Errors I’d made. Taking me an hour and a half to get right!


Next Carer, she mopped the wet room and kitchen for me and hoovered the main room and mini hallway, too. Thank you! 

Brighter now.

She came. She had got the bug, or do they call it the Lurgi now? Poor gal was struggling. ♥ But she still put on my diabetic socks for me; bless her cotton socks. She gave me Peptac and painkillers. She needs some medications as well.

This came up on my computer…
ARGH! SOB! SPIT SHI…
Demoralised!
After following several commands from the prompts, I eventually got to the message: “Sign in with your first code number and password from when you originally bought and installed this version of Windows.” 
I tried pressing continue and got to another screen.
They asked me which installation option I wanted to select for them to reinstall Windows 10. I couldn’t even understand what they meant, so I pressed continue again. A list of several reasons for failure appeared on the screen, with the option to ‘Close the Computer’ or ‘Cancel’. Since I had no choice, I Cancelled.
The computer went off anyway.
Downhearted, I had to accept that there was nothing I could do about it. I’ve been trying to get someone to check the computer for me. I’ve asked every Carer and the Wardens if they know of anyone trusted who can help me. They all said no. I’ve only used Tech Help twice before. Both times, I got ripped off, and the computer had the same problem a few days after it had been ‘mended’. The last one, who said he was a student, gave me a telephone number to call if anything went wrong. And took his £250 quid with him, Two days later, it did. I tried ringing the number hundreds of times over the next few months, but it was never answered. I’m no better off now in getting any help.

I sulked for an hour or two, then made a meal and put the TV on. But the internet was not available it said on the TV screen. What the hell had I done now?

Again, not really knowing how to use the remote control, I risked pressing unknown what actions they are for buttons. Then I got down on the floor to check the conveniently left on the carpet by the Liberty-Global Virgin Media Engineer who installed the TV, phone and internet for me, and noticed two buttons I could press on the front of the box, a minus on one, and plus sign on the other. Which do I try? I pressed the minus, and the screen stayed the same. Later, I braved trying the plus button, and the fibre TV came on. I dare not touch the box again now…
Another problem now. Having gotten down on my knees to the box, I could not get back up on my feet again! The  catheter tube was pulling painfully when I finally got moving a little. Cartilages Carole and Chloe, Back-Pain-Brenda, Arthur Itis, and Vasculitis Vanessa joined forces to give me as much pain as possible when I tried to move the legs. Having spent about an hour manoeuvring myself near the recliner to use it as a pull-me-up, The right ankle PN electric shocks kicked off, and I landed back on the floor during what was to have been my final effort… landing on my left knee with a thud. Now I had Cartilage Chloe even more painfully giving me some!
I stayed there for a few minutes and considered using my wrist alarm to get help. I made a final effort; if this failed, I would press the wristlet, I told myself.
At long last, I was in the recliner and spent a good few minutes recovering from the incident. 

MedPhorpainI got the Phorpain Gel out and rubbed some in both knee cartilages, and I took an extra Codeine painkiller. As I put the packet back, Shaking-Shoulder-Shirley kicked off, and the blister pack flew out of my hand as I grabbed the chair arm to steady myself. I’ve still not found where it went to yet!

Then, I sensed the smell of the food left in the saucepan on the hob! It was only on a low light, which prevented it getting burnt. I made and added some gravy to it.
The mood I was in, may have prevented me a little of enjoying the meal. But the bean stew and added baked smoked bacon. I was feeling a little sorry for myself with today’s run of bad luck… but I realised that it was nothing unusual for me.

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Incapable Inchy: Saturday 9th March 2024

/ Inchie / 6 Comments

Let’s give Labour a chance to cock it up, first…
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At least it was different this morning. Well, it wasn’t, but it would have been nice if it had been. Confusion Conrad Reigned supreme! I took several photos. I lost or misplaced them, they escaped into the ether, or I forgot to insert the SD card. I think I merrily took shots of the catheter bag, a scene shot or two, and the bruise coming up where I trapped my fingernail in the kitchen drawer, expecting to retrieve them later for the blog.
My body and brain march onwards towards the obliviousness of total incapability and insanity. 
(I’m in no rush, mind!).

The pouch urine was far too red for comfort again. I sorted the waste bags (the photos self-destructed).
Got the computer onNow this shot one was not on the AWOL list.

A shot to the right from the kitchen.
A shot to the right from the kitchen.
I may have got these in the wrong order?

The wee-wee kept changing colour, and the pouch suddenly filled up a few times.

As best I recall, Carer Maryham, poorly, bless her. Carer Chris made the second call, Carer Joanne the second, and Carer Victor, the third and fourth visit. Not exactly any seizures today, but the straightforward mind-blanks paid me too many visits. After each one, I struggled to regain what I was doing before; and ended up starting two or three, often more, different things and none getting finished. But, as Tom Jones sang, “It’s Not Unusual”. Was it him or Englebert?

Carers Health Checks of late, returns
A fit lot of folks!

A blue shade sky tonight.

Got the meal prepped, cooked, and served. I kept to the diet and didn’t have any bread as I’d been instructed. I had a brown baguette instead. Ahem!
By gum, it was a good un!
Gobble, slurp… gone! Hehe!

Took this view as I washed the pots.

I went back to watch some TV, fell asleep, and Carer Vic arrived. He medicated me and took my socks off for the night. Oh, dearie me…
He put some cream on once again, coming up with ankle lesions on both ankles/legs.
Not good, this, at all!

I did find them, but it took me a lot longer than 11 seconds… nearer 11 minutes. Haha!

TTFN

Ireful Inchy: Friday 8th March 2024

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Yet another sad day, concentration-wise. I swear I was more out of it than with it for the majority of the day.
Doing the blogging, or trying to, I’d wander off to the Porcelain Throne; on the way back, I’d see some bits on the hallway floor and get the hoover out. A Carer calls, and my attention varies. The ten-minute Carer’s call was over, and I’d forgotten about finishing the hoovering and moved on to check what was in the fridge to cook for my meal for tonight. I returned to the computer and was amazed that so little was done on it. Searching for a Local News Snippet on the Your Area News site, something reminded me of my youth. I spent ages casting back my mind to my horrendous school days, musing at my bad choices, the bullies, the neighbours, etc. 
I went to make a brew of Glengettie and found that the hot water tap had been left on and had run cold.
Stubbing my toe en route back to the computer, I could not find my notepad with the scribbled reminders to use. A seizure or mind-blank took over, and suddenly, the pain from a PN electric shock in the leg (it’s moved up from the ankle now) brought me back from wherever I was, and it dawned that I’d been AWOL for two hours or so. As I stood up, the pain from the Catheter tube pulling on Little Inchie was excruciating. I felt the warm wetness as the blood flowed down from the PPs onto my leg and off to the wet room for cleaning and medicationalisationing.
When I came out, I set about setting up the template for the blog, not realising that I’d already done that and had some work to do. More time lost. No doubt I did many other things; the proof was in the few photographs I found on Kodak Tim’s SD card. These also prompted some remembrances. But what I did most of the day was a part of the mystery. 
I reclaimed a degree of awareness of things, but not until the evening Carer called. I think Carer Sam came and put some prescriptions in the medical drawer. Vagueness is the word to describe today, I guess.
Belatedly doing, the nurse’s ode flowed easily. And although, as per usual, I was getting so tired and weary, which in itself was another mystery cause I’d done bugger all today.
I didn’t even get back to this blog until late Saturday morning! I think I’ll add Confusion to Vagueness.
Ah, yes, Carer Maryham did the first call. (I think) She was not very well; I think she had caught the ‘Bug’, bless her. I seem to recall worrying about her. 
Only a few photos to go on, with the odd prompted memory added where I had one…
Thank heavens, I at least got the top graphics done early. I’m waffling well, ain’t I?

Front car park, from the kitchen window.

Misty morning.

Late morning, I think.

The new bed, with the fall-out bar and a slide-under-table. It’s comfy enough for me!

It looked like the road resurfacing was all done.

Afternoon or teatime sky.

I missed the sunset due to a mind-blank.
But took this as I went to make a meal.

See the difference twixt reality (above),
and how it looked on the box?
Most disappointing taste, too!

All the bestest!

Inactivated Inchy: Monday 4th March 2024

/ Inchie / 9 Comments

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Good Morning!
Photo kindly taken by Carer Maryham after she helped me wash & shave and get dressed. ♥

Dark wee-wee, bloodied pee!

A red-hued morning view.
Tsk!

Computer on, and reduced some things on the order for the week after next from J. Sainsbury.

Made up the bed. Well, flung a quilt over it.

Today’s fodder order arrived.
Not a lot this time.

Took these shots.
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These came out okay.

Computed for a couple of hours. Then, I made a brew to dunk some of my sugarless biscuits.
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Taste Rating: 3/10.

Took two shots of the kitchen window view.

Then arrived. At this stage, I was doing well mentally… no, that’s a fib! I was not doing too badly in the concentration stakes. We had a little natter after she’d medicated me and checked the taps and cooker.
After departed, things took a long lasting turn for the worse. The started. I was using the small blue plastic
picker-upperer, and as I leant down to retrieve the dropped hearing aid, I injured the picker-upperer. Bent it rather acutely… it’s not working. Now… I may have said an assortment of naughty words.
So, I was frustrated and self-critical as the landline burst to life. The Physiotherapist made sure I was aware of his arrival. Haha!
The gentleman arrived minutes later. But with my having just broken the picker-upperer, my mind was all over the place. What I can recall, is he tested both & s abilities, by my lifting the legs as far as I could without too much pain. Won that competition easily. He asked if the walker was better now that he’d mended the ‘wiggle’ on the right handlebar, and I thanked him, as it was a lot easier to use now. Many questions were answered, hopefully correctly, by me. But details of them have now gone into the ether. I recall losing what I spoke of a few times and feeling foolish. The man was understanding about this. I think my using the bed was referred to. He said he’s had a word with my doctor about the cartilage. Maybe it’s more pain relief. Almost sure. Ah, I did tell him of getting more frequent now I’m using the bed. But I sense that an awful lot more was discussed.

Variety is the spice of life. Hahaha!

I found on the reminder notepad that I’d scribbled what I thought was Rachael. No idea why?

Eventually, at long last, I started updating Sunday’s blog and got it posted very late in the day. I was now getting exhausted & weary. And just had to give up the blog working. I may get up early in the morning and try to start early on it… or not.

I got the stew and potatoes cooking and put the TV on… Oh dearie! I was baffled by this message that came up!

The remote control, was not affecting anything I tried to get to the later button to click on it. Then I dug out the Bush TV remote, which the engineer who fitted it up told me I would not use, and he said to throw it away; it was not needed. I tried to see if that would work to get to the set-up button, but that wasn’t doing anything either. So now, paying three times as much as before for the TV & phone service, which I didn’t want anyway but got conned into taking, and having to buy a Smart TV to use the service… I’m left without any TV at all! I don’t know if the message was from or the Bush television people? I need help here; if anyone can and knows what I can do, please chip in. I’ll ask a Carer if they can phone for me. It said a reset will be needed, that scares me; I could lose my internet service?
Depressed again now!

Got the fodder served up, but I was not in a good mood to enjoy it. But still ate it ravenously.

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Took two-night shots from the kitchen window. Well, I’d not TV to watch. I spent £400, and £88 a month, and may end up with no landline, or computer supply… I’ve virtually lost the TV anyway. Grrr!
The first artistic one. Haha!
The second one.

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I’m fuming, frustrated, frumpy, fed-up, frightened, frazzled, and flagitated. Fighting a ferocious fiend, fragmenting my brain & body, without any help, physiatrics or therapy! Did I write that?

Keep Safe, each!

Inchy: Sat 24 Feb 24: My last bread and chips ever eaten! Or are they?

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A cold balcony & misty morning!

A bit nippy when I opened the kitchen window!

Carer Chris, who brought my laundry back last night, arrived. Medications administered. Peptac & Paracetamol were taken this morning… that was because was giving way pretty often. At least up to now, anyway. I pointed out the fictional line in the ode, where he hits me with a feather duster; he did larf!

I started to put last night’s laundry away.
The dressing gowns were still damp. So I hung them on the air warmer.

After blogging for an hour or so, I took this kitchen photographicalisation.
Surprisingly, IU found the day pouch needed emptying, so I did. It looked as if the blood streaks had gone, but it was still a smidge red and had bubbles… large ones this time in it. I took a second shot of the wonderfully clear now clouds. I saw a rabbit’s head and a spaceship in the sky while I was there.

More blog work was done… but it was not helping my concentration, and the usual cock-ups and mistakes were rife. I’m taking ages to correct them; even now, I don’t know if it is.

The second Carer took this photo of the once again filled-up catheter day pouch…

Rang out.
It was the Vitamin B12 tablets. A year’s supply!

The flipping pouch needed emptying again.
The Carer took this photo, too. Not many folks get a picture taken of them by their Carer as he’s peeing… well, pretending to pee! Hehehe!

Another shot while the clouds were so perfect for picturing. I saw more things in this one.

I must phone the district nurses on Monday. To inform them of all the wee-weeing going on.

Getting late now. Another beautiful view was taken.

The sun goes down. Bootiful

Minutes later.

I think there was a fire somewhere later. I could hear a lot of klaxons and see red, blue and twos. 
I think there is smoke in the photo above. It seemed to be in the Basford area again.

I missed this one I took earlier at the end of the car park mudslide. 

Eating, over the years, is changing,
Had to stop alcoholic drinking,
After the heart op, limiting…
Brassica off the menu, heartbreaking,
No caulis or brussel sprouting,
Broccoli, kale “No Eating”,
Low in Vitamin B – could cause dying!
The doctor suggested Smoked Haddocking,
Which is high in Vitamin K, alarming,
Can’t eat that cause of the Warfarin!
Now Diabetes 2 is coming…
Now to cut down on bread, appalling!.
Potatoes too, 
It makes me blue…
What can I do?
Come on… I’m asking you!
Oh, did you find the faults? The Two?

TTFN

Inchy: Thur 15 Feb 24: NHS Falls and Rehab Assessment today

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Another hazy, confusing day. Constantly fitting between tasks and somehow not getting many finished. I had a few minutes of almost clarity of mind when I was replying to the comments… it was heaven as long as it lasted. But that was it productiveness-wise. I struggled when the Community Rehab & Falls people were doing an update on my condition. I remember a lot, at least I think I do, but so many blanks, and I can’t find the numbers they left to contact them; if I remember anything, I’ve not told them as I fumbled along, losing track of what was going on. Stuttering Stephanie caused embarrassment, and (there’s a word for this, but I can’t recall it) when I used the wrong words a few times when answering their questions. I look up the word again; it is ‘Receptive Aphasia’; I’ve now given this ailment a name, calling her Receptive Aphasia Phyllis. 
Confusion reigned, and I was out of it more than in. And, I forgot to record, or can’t find where I wrote it if I did, the time of their next appointment. Humph!

Once again, it’s the next day, and I have only just started on this blog. (Friday 09:30hrs) 

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Getting my head down so late in the morning again and Thinking Storming Steven having regular go at my sanity, I was finally settling into a decent period of sleep, and the Carer arrived. (07:15hrs). This I recall. But what happened on the visit, is a mystery to me. I can’t read the scribbled notes about whatever happened, well, the odd word, like, no pouch… waste bags, throne and view. This, I assume, was the view. The first picture on Kodak Tim. Not many were there, with the two-hour-plus Porc failedvisitation from the Falls & Rehab interview. A lot of that I can remember, along with the blanks.
Another reversal in style and content from the first failed visit to the Porcelain Throne.
Waste bags were sorted out and placed near the doorway into the foyer. I recall seeing Josie’s as was, door and started to worry about her. I’ve found out she is in a care home in Arnold, but not which. I want to visit her, but no one seems to know where she is. Her family have been emptying her flat all week. So sad!
I did ask for the carers on each visit to take the laundry down for me.
But it’s still there, a bulging bag that is only going to get fullerer! Hahaha!.

Ah, I remember now; the first Carer was Christopher, and he came back later to check I was alright. Apparently, I was ‘Out of it’ and expressing depressional feelings on the first visit. Bless him!

NHS FALLS & REHABILITATION VISIT

Miguel, with Trainee Charlotte from the Falls Team, arrived at the flat, to do an assessment on me. 
Some of this section may be out of sync or missing altogether due to my FND.
Had to put new batteries in the hearing aids, and they are all fine now with the hearing problem. But things being told me were not sinking in, and I was… well, what the word? Disorientated, adrift and losing track of what I was replying to as much as the advice and questions that were coming my way. 
The medical history was updated. After an hour or so, I was told that an appointment would be made for a visit from a Physiotherapist. Which may be affected by the Physiotherapist’s Strike Action. I’d hoped to get help with the FND symptoms and Cognisant Impairment Iris. They bother me more than anything physical; I know the falls and pains are caused by a combination of Peripheral Neuropathy, Pete, & Receptive Dysphasia Phyllis. I think I mentioned the electric current tingling in the ankles and feet getting worse. If not, I meant to!
Miguel got me to do some exercises with stretching, leg lifting etc. Concentrated on the knees, and Cartilages Chloe and Carole. Carole was far more painful when lifting the right leg. I mentioned that it sometimes the left leg worse, or both of them. He mentioned something at this point, I think, but that has absconded into the grey haze of forgetfulness along with other things.
Talking of getting about difficulties, he had me walk around the flat with the trolley. I mentioned , and her wobbly handlebar. Miguel had it sorted in a short time for me; it works fine now. Grrreat! Thanks.
Reflux Roger kicked off while we were talking, and Miguel looked very concerned. I’m sure I explained how the problem arose after the Mechanical Aorta Valve operation. Ensuring him that there was only a vague imitational bit of pain each time it blasted out the air through my mouth, and it happens every day or night. The night ones would have woken me up, but with Thought Storming Steve and Shaking Shoulder Shirley, I was usually awake when he hit me, anyway.
After they had left, I could not find the contact numbers for them, as I mentioned earlier. Tsk!
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The late afternoon is a mystery to me. I know I was a little peed-off at myself for not recalling or recording matters of the visit and self-loathing at the time, but rather than a Memory Blank this time, it may have been due to Receptive Aphasia Phyllis. As I had not got anything done between drifting off and coming back for about an hour, on the computer. Of course, I may have nodded off in the computer chair?

Can of 3-Bean soup, with a vegetable and tomato sauce. Two cheap but nice Asda baguettes. A pot of 10-calorie strawberry jelly for afters.
It tasted lovely, rich, flavourful and most of it was eaten. (I made too much, methinks!)

I thought all that veg might have helped me on the Porcelain Throne Evacuation. It didn’t. This was my third failed attempt today! Hopefully, by the time the food works its way down into the guts, things will improve. Of course, I could be wrong!

How did you do at guessing what the thingamabob was in the photo?
Hehehe! Did you spot the face in the foam cleaner? I have to admit, I can’t see it now, but did at the time? No, no, I can see it again now!
I took a terribly bad picture of the evening view from the kitchen window. I’m getting good at doing this… something of an expert almost! But I tried one higher up, thinking it would be easier to get a decent-quality shot of the clouds in the night sky.
The clouds I saw with my eyes taking this, seem to have melted away? Ah, well!

I clouted my right shoulder against the wet room door. As I checked, I’d not left any taps running. This produced the longest-ever bout come attack from Shirley’s Shaking Shoulder I’ve had for a long time.

Shirley’s shuddering carried on to when I got my head down. Typical, the one night out of the last ten, that Thought Storming Steven was giving me a rest, and Shirley takes up the mantle of keeping me awake!

Unbelievable! I finally nod off in the early hours of the morning, and REflux Roger wakes me up repeatedly with his gigantic emissions of wind! Not that they hurt a lot; they just wake me up with the power of the gastroesophageal emissions. Humph!

TTFN!