Lewy Body and Vascular Dementia

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TUESDAY 27th OCTOBER 2026
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A bigger mess than usual today. Please forgive any repetitions, omissions, or cock-ups.
If I get any further behind, I’ll have to give up the blog. That’s the last thing I want, but the practicalities suggest it will happen. Heartbreaking!
Just so much happening medically, and me suffering mentally… no, it has to be said and accepted. But can I?
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The ever-returning sciatica…
Seizures and Anne Gyna,
The ever-blocking Catheter,
Painwise, there’s nothing worser,
Confirmed: I’m now an Alzheimer,
With Lewy Body & Vascular Dementia,
Now I’m a palterer, a prevaricator,
Brought on mayhap by my apraxia?
PN, TBI, DCD… now ambisinister,
I’m a changed person, character,
Can’t enjoy a good clishmaclaver.
When talking, I can’t remember…
What I was saying; gone forever!
My chinwag topic? Off in the ether,
I don’t think it’s Cacodemonomania,
They’ve not yet diagnosed cachexia…
My cerebrum can leave me disinure,
My concentration’s like a didapper,
I’ll get back to my usual dysphoria…
Think MP, freebooter, backhander…
Or was that just Keir Starmer?
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WEDNESDAY
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I’ve mixed up some days’ photos & tales of. Sorry.
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Scab came off the knee.
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My Angel Jenny came up to the flat, and she and Carer Ejaz set about communicating with British Gas to sort the arrangement for, promised eight times and failed to show BG engineer to sort out the electricity meter. A quick explanation of why.
Almost two years ago, the oligarchs from British Gas started asking of a meter reading. But we could not read it. It seems that I’m the only flat with an old meter. Different to all the others. Confused yet? I am already. Cause I know what’s coming.
Veiled threats of cutting me off. Warnings that the meter might not work properly and I’d lose power. They will have to cut me off if I don’t give them a reading. Carer Ejaz took on the oligarchs! But it was of no use. Eventually, I was told they were sending an engineer to check the meter. No one came. Ejaz rang yet again. He was given telephone numbers to ring. Which the lad did. He a well-pissed of voice that said, “I am fed up to my back teeth with BG giving out and telling disgruntled customers our number – we are connected to BG in any way! Do not ring back! Ejaz kept ringing; they (supposedly) arranged more visits and assured us they would come. Now, on the eighth failed oligarchal BG appointment, lovely Jenny came up to the flat while Ejaz was here and tried to find out what’s going on.
I, unfortunately, had a seizure while the business chat got more farcical and brazen lies were given out by BG. Carer Ejaz explained what had gone on while I was out-of-it; he wrote it down for me on a pad.
They had only given Jenny the same number to ring!
The poor gal did so and got rebuffed for calling them, like Ejaz did over a year ago. They asked a long time ago for a photo of the meter. Ejaz told them he had already taken photos and emailed them to BG 6 months ago. Poor Ejaz and Jenny. Jenny gave up, and I can’t blame her. She suggested I stop the debit payments after I told them my intentions and why. I’m not in a good state right now to do anything about it. Why? I’ll tell you.
More seizures, lost blood from the knee scab, and this morning… when I woke about three o’clock, I was in a lot of discomfort bladder-wise. I grabbed the torch and checked the night Catheter bag; it was empty! Yep, the flowback was getting more and more painful. It was verging on agony, far worse than ever.
I started guzzling water for two hours, barely stopping, to get it flowing again. No, nothing. But all the drinking was making the pain worse than ever.
Carer Andrew arrived, and I asked him to call the district nurses for me. I was so appreciative when they said someone would call on me. And they did not tell me to go to the hospital A&E by taxi.
It was a painful wait, and I was losing it when the nurse came in. She soon got me sorted; thank her very much. X
I admit I got a smidge worried over the next two hours, as nothing flowed. I was on the verge of bothering the nurses again when I saw tiny droplets of urine going down the tube, not a flow as such. I kept drinking all the time, and after another half hour, it started to fill the bag, very slowly. I think things are getting back to normal now.
Which eased my mind. I had a mini seizure, and decided to sit on the bed… talk about lucky, I WAS!
As I neared the bed, an instant dizzy spell had me over. What a fantastic landing on the soft bed! Yee-Haa!
That so beats landing on the floor!
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Better get a meal sorted now. Bacon sarnies, methinks.
Back in the morning… Catheter permitting.
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Bacon bits, on flatbread, boiled & soy-sauced small spuds, and some teriyaki sauce for dipping. Nice!
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Not to mention his newly diagnosed
Alzheimer’s, with Lewy Body, and
Vascular Dementia.
I forgot, but I meant to.
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TUESDAY 6th OCTOBER 2026
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WAKING UP – WORRA SHOCK!
06:05hrs: I could still taste the acidic flavourings of having had a Seizure. Not until I moved; then the pains revealed themselves. The knee scratch was hurting, the lower back, and the right ingrown toenail was giving me a fair bit of agony as I gingerly stood up.
Then fell down against the recliner and knocked ¾s of the stuff off of the ottoman. Then, as I got up, I noticed many other items, seemingly knocked in the direction of the bed. This made me think a nocturnal seizure must have happened earlier in the night. I started to lose things then. I mean, my grip on the situation. I honestly cannot recall what happened then, but when I floated back into semi-reality, I was mopping the kitchen floor! Using the old-fashioned mop and bucket! of don’t recall fetching the mop or bucket, or filling and starting to use it. About half of the floor was already done.
I finished it, and most of the pain from the tumble evaporated. Apart from the leg wound and ingrown toenail hurting, I was as good as I’ve felt for ages. But I was not ready to use logic. I cleaned the mop & bucket, and got onto the Porcelain Throne. All this I can remember clearly. Particularly the evacuation. It took me ages to get it moving again this morning, and I had three mini-evacuations that needed painful urging of each torpedo. I bloody time cleaning up; that urged me to wash and apply the Germoloid cream.
Then, I got into a session of body washing and medicating where I could reach, shaving, doing the teeth, and medicating. The battle to get the protection pants was… well… horrendously stupid and painful.
Got the dressing gown on, and returned to the front room; I say that, but I’ve not got a back room. (Note the humour in this paragraph & blog?) That is because of how the Social Ladies visit went so well! 👍🏻
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Carer arrived as I was taking some snaps of the view from the kitchen window. I finished taking them and was pleased with the results compared to how they looked
to the naked eye.
He was speaking to me from the other room, but I could not make out what he was saying. But guessed he was asking me what painkillers I needed. I went to the room I hadn’t been in for an hour or so and found he was asking that. I told him, and surprised him, that I didn’t need any, thank you. But got a surprise myself when I saw the things on the floor that I’d apparently knocked in my seizure and tumble.
He used the picker-upperer to collect them and put them back in the box. Then I asked him to put some non-medical heat salve on my back & shoulders, which he did. He made a decent job of it today. But did not do barrier cream or body checks, as Ejaz & Mirza do. Not that I’ve seen Mirza for weeks. I love those lads.
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Limbs Transmogrificationalisation?
I think that my right leg is morphing into an alien’s or an ostrich’s leg!
The top half is going all chicken-leg-like.
The bottom half is gathering warts, bruises, red patches, spots. Pimples, a wart, a boil, and gone all misshapen. Both feet have shrunken, going brown, & vein-displaying. I can get into my soft slippers by myself right now!
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Carer Ejaz, always welcome and pleased to see him, arrived. And set about issuing the medications; then he took the washing down to the laundrette.
Returning shortly, he spoke of the Social lady arriving in a few minutes, and the landline burst into life.
It was that lady, saying she was on her way, but would be a little later than she had arranged. No bother; I was looking forward to seeing her and hearing of her plans.
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COMMETH THE SOCIAL LADY (Laura?)
Most of what was discussed in the nearly two-hour meeting has now gone into the ether. A pleasant, supportive discussion went well until I had a seizure. Memories before this incident are sparse. Almost like I’d had a sort of mind-wipe.
As soon as she departed, I asked Ejaz what was said that was important and that I needed to remember.
I made a point of thanking her; it’slovely when someone tries to help me; at this moment, my spirits rose wonderfully. Great!
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Ejaz related that: I was asked if I would like an independent association to take over my finances for a small monthly charge. He didn’t say if I agreed,
Wonder if I did? Surely not? The lady would contact the Carers for me and ask if I could have Carers Ejaz, Mirza and Prem as my regular Carers. I do hope so. Apparently, I explained why I wanted them. Obviously, because they are so good, and the others are not. I explained that things aren’t getting done, and I know why: I have to go on all the medical calls; then they claw back their pay ratio by missing others off the roster. Seems natural to me.
Plenty of other subjects discussed that neither of us could remember. But Ejaz was in a hurry. He fetched the laundry back up, and as he was leaving, he saw me pick up the bag to hang up the clothes. He stopped me from bending and said to ask the next Carer to do it. Which I did. Caring chap!
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Returning to this blog for an hour or so, and a Carer arrived. He was miraculously willing and did not go on his phone as much. Wonder if he heard about the meeting?
He even took a snap of me in my tork. Being a comedian, I posed for it. Hahaha!
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YeeHaa! Carer Mirza came on the last call! The Intercom was not working again! The lad rang three times, but I could not admit him. So, I went to the ground floor and into the lobby… but Mirza was not there. He must have rung NCC control to be let in. As I was going down, he was coming up. I got back up, and he was in the flat. Worra life!
But I didn’t mind; I was overjoyed to see him. It’s been three or four weeks since he called. I just hope that my beloved Social Lady can convince the Carer Company to send the three good ones to see me and increase the hours. Fingers Crossed on that! 🤞🏻 And remove the frustrations of not getting things done. Mizra didn’t have a lot of time with him, not getting in when he rang. I blame it; it never worked properly since it was installed. And I don’t blame the NCC. They have been good to me.
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I got the meal prepared to go in the oven. He asked if I needed help with prepping the meal. He always asks. Gawd, I’ve missed him. Sometimes I struggle to open cans, can’t read instructions on the packets or tins. He does not put the nocturnal bag on unless I’ve had my meal earlier, for fear of me getting entangled in it and tripping or falling. I know I’ve just said it, but I pray the three lads can cater for me. Else I’ll lose them altogether if I’m moved to another care company. Bade him farewell.
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Went to check on the meal and added some carrots I’d forgotten to put in the dish earlier.
Took a snap of the evening view; not a good one, but I’m not bothered, with today’s prospective good news.
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None of the other expected callers arrived. Shame!
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I’ll get the food now… I’ll be back in the morning.
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What a cracking sunset snap!
Found it in the camera; hope it
is not from a previous day?
I can’t remember taking it.
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Finished off this blog, but not until well past 10:30hrs on Wednesday morning. So, I’m unfortunately more than a little behind with things again.
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