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Another hazy, confusing day. Constantly fitting between tasks and somehow not getting many finished. I had a few minutes of almost clarity of mind when I was replying to the comments… it was heaven as long as it lasted. But that was it productiveness-wise. I struggled when the Community Rehab & Falls people were doing an update on my condition. I remember a lot, at least I think I do, but so many blanks, and I can’t find the numbers they left to contact them; if I remember anything, I’ve not told them as I fumbled along, losing track of what was going on. Stuttering Stephanie caused embarrassment, and (there’s a word for this, but I can’t recall it) when I used the wrong words a few times when answering their questions. I look up the word again; it is ‘Receptive Aphasia’; I’ve now given this ailment a name, calling her Receptive Aphasia Phyllis.
Confusion reigned, and I was out of it more than in. And, I forgot to record, or can’t find where I wrote it if I did, the time of their next appointment. Humph!
Once again, it’s the next day, and I have only just started on this blog. (Friday 09:30hrs)
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Getting my head down so late in the morning again and Thinking Storming Steven having regular go at my sanity, I was finally settling into a decent period of sleep, and the Carer arrived. (07:15hrs). This I recall. But what happened on the visit, is a mystery to me. I can’t read the scribbled notes about whatever happened, well, the odd word, like, no pouch… waste bags, throne and view. This, I assume, was the view. The first picture on Kodak Tim. Not many were there, with the two-hour-plus visitation from the Falls & Rehab interview. A lot of that I can remember, along with the blanks.
Another reversal in style and content from the first failed visit to the Porcelain Throne.
Waste bags were sorted out and placed near the doorway into the foyer. I recall seeing Josie’s as was, door and started to worry about her. I’ve found out she is in a care home in Arnold, but not which. I want to visit her, but no one seems to know where she is. Her family have been emptying her flat all week. So sad!
I did ask for the carers on each visit to take the laundry down for me.
But it’s still there, a bulging bag that is only going to get fullerer! Hahaha!.
Ah, I remember now; the first Carer was Christopher, and he came back later to check I was alright. Apparently, I was ‘Out of it’ and expressing depressional feelings on the first visit. Bless him!
NHS FALLS & REHABILITATION VISIT
Miguel, with Trainee Charlotte from the Falls Team, arrived at the flat, to do an assessment on me.
Some of this section may be out of sync or missing altogether due to my FND.
Had to put new batteries in the hearing aids, and they are all fine now with the hearing problem. But things being told me were not sinking in, and I was… well, what the word? Disorientated, adrift and losing track of what I was replying to as much as the advice and questions that were coming my way.
The medical history was updated. After an hour or so, I was told that an appointment would be made for a visit from a Physiotherapist. Which may be affected by the Physiotherapist’s Strike Action. I’d hoped to get help with the FND symptoms and Cognisant Impairment Iris. They bother me more than anything physical; I know the falls and pains are caused by a combination of Peripheral Neuropathy, Pete, & Receptive Dysphasia Phyllis. I think I mentioned the electric current tingling in the ankles and feet getting worse. If not, I meant to!
Miguel got me to do some exercises with stretching, leg lifting etc. Concentrated on the knees, and Cartilages Chloe and Carole. Carole was far more painful when lifting the right leg. I mentioned that it sometimes the left leg worse, or both of them. He mentioned something at this point, I think, but that has absconded into the grey haze of forgetfulness along with other things.
Talking of getting about difficulties, he had me walk around the flat with the trolley. I mentioned , and her wobbly handlebar. Miguel had it sorted in a short time for me; it works fine now. Grrreat! Thanks.
Reflux Roger kicked off while we were talking, and Miguel looked very concerned. I’m sure I explained how the problem arose after the Mechanical Aorta Valve operation. Ensuring him that there was only a vague imitational bit of pain each time it blasted out the air through my mouth, and it happens every day or night. The night ones would have woken me up, but with Thought Storming Steve and Shaking Shoulder Shirley, I was usually awake when he hit me, anyway.
After they had left, I could not find the contact numbers for them, as I mentioned earlier. Tsk!
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The late afternoon is a mystery to me. I know I was a little peed-off at myself for not recalling or recording matters of the visit and self-loathing at the time, but rather than a Memory Blank this time, it may have been due to Receptive Aphasia Phyllis. As I had not got anything done between drifting off and coming back for about an hour, on the computer. Of course, I may have nodded off in the computer chair?
Can of 3-Bean soup, with a vegetable and tomato sauce. Two cheap but nice Asda baguettes. A pot of 10-calorie strawberry jelly for afters.
It tasted lovely, rich, flavourful and most of it was eaten. (I made too much, methinks!)
I thought all that veg might have helped me on the Porcelain Throne Evacuation. It didn’t. This was my third failed attempt today! Hopefully, by the time the food works its way down into the guts, things will improve. Of course, I could be wrong!
How did you do at guessing what the thingamabob was in the photo?
Hehehe! Did you spot the face in the foam cleaner? I have to admit, I can’t see it now, but did at the time? No, no, I can see it again now!
I took a terribly bad picture of the evening view from the kitchen window. I’m getting good at doing this… something of an expert almost! But I tried one higher up, thinking it would be easier to get a decent-quality shot of the clouds in the night sky.
The clouds I saw with my eyes taking this, seem to have melted away? Ah, well!
I clouted my right shoulder against the wet room door. As I checked, I’d not left any taps running. This produced the longest-ever bout come attack from Shirley’s Shaking Shoulder I’ve had for a long time.
Shirley’s shuddering carried on to when I got my head down. Typical, the one night out of the last ten, that Thought Storming Steven was giving me a rest, and Shirley takes up the mantle of keeping me awake!
Unbelievable! I finally nod off in the early hours of the morning, and REflux Roger wakes me up repeatedly with his gigantic emissions of wind! Not that they hurt a lot; they just wake me up with the power of the gastroesophageal emissions. Humph!
TTFN!