
My heart is not in it today, for the first time ever. I thought surely today I could have a rest from the constant flow of problems. No!
Too many things are going wrong with no help or hope of anything changing; well, they might get worse, but not any easier to cope with. Medically, all those promises of help given to me in the hospital came to zilch. Thinking back to this week’s cock-ups made me feel even worse. Two failures to get to the wet room on time. I’ve still not got that cleaned up after them. The Carers’ one extended visit a week has been used up with one helping me get to the dentist, next week the opticians. The laundry has been done, but it came back wet. Further shame: the times I’ve not closed the catheter tap properly… or may have caught it on something, I don’t know. They think, and say it is simple, closing a loose valve, and just say “Just make sure it’s closed properly”. Which sounds smug to me.
This week has seen me leave the hot water tap running and the water getting cold, on 5 or six days. Twice on Tuesday. So, I have an excuse not to have a shave and shower? And my BO must be bad now. It’s not like a High Horis event, when I get the ‘Sod-em-all’ attitude at all. It’s more severe, worse. I know what I’m doing and just can’t muster the interest to do owt – never been like this before in my life. All I create is self-hatred and loathing for being so pathetic. It’s like I’m sinking.
It’s like when I can’t find something or recall names and dates. But not when you have Peripheral Neuropathy. I lose the sense of touch quite often, particularly this week gone by. I’ve dropped countless items; the ones I remember that caused me even more bother were dropping the slow cooker bowl when taking it to the kitchen sink to clean. Not only did it land on my ingrowing toenail, but the leftover food spilt down my legs, one leg strapping, undersocks and into my slipper.
Tuesday, I think it was, I could not let go of a mug of tea with my right hand; it’s usually that one. And while going to stand over the sink,
Then, of course, there was this week’s tumble. That may have been my fault as I got up too quickly, and went down, gratefully via the c1966, £300 Oxfam charity shop-bought, wincingly grotty, beige-coloured, crumb-covered from my nocturnal nibblings, itch-making, uncomfortable, positively unhealthy, and dangerous, no longer operational, virus-breeding, easy-to-fall-out-of, Catheter-tube-trapping recliner.
An ambulance was called, and a delivery driver helped me back onto my feet. The ambulance was cancelled.
Call from the nurses, the ambulance is back on, but it will take about 4 hours to get here.
So, I got things ready, the trolley out of the balcony, filled the box with nibbles and NHS paperwork, dressed and waited. A cardiac nurse phoned for a Q&A session. Ambulance cancelled. Two hours later, an ambulance arrived. Argh!
Did all the tests, and left a report, and let me stay at home. And now, days later, I’ve still got
Indeed, when we could not find the INR dosage sheet, and three of us searched all over, a Carer yesterday remembered that I put it in the walker box in the medical folder when we went to the opticians, and he retrieved it. Yahoo! Blaming me for forgetting where it was. Blamed me! Hahaha!
Then there have been two loose valve catheter leakages. Today’s leak soaked one foot, night shirt, socks, leg straps and slippers. And the bloody carpet again. Luckily, a Carer came as I’d gingerly got a bowl with hot water and Dettol to wash my feet. Thanks, mate. Now I’ve got all the extra laundry to do. Slippers and khagoule socks to be handwashed and air-dried. I’ll never get caught up. Bending and stretching bring on the dizzies and loss of balance.
I pray someone in the medical world reads this blog. Then again, I’m not interested, just guilty of giving up. But I’ve taken some photos, so I’m going to put them on, and they might prompt the old battered memory box. I can’t believe I’m writing this pathetic, mardiness-ridden rubbish. I might be unknowingly inspiring myself by reading it back and pulling my socks up. That’s another problem: I can’t get my own socks on. I can get the socks off sometimes, but usually end up tearing them with the picker-upperer.
A Carer arrived as I was typing this, the last call of the day. And I felt a little better in myself. I got this updated on Saturday morning.
The rain started.
still in the wetroom.
Computer & TV.
Gown and socks, slippers
went in the laundry basket…
AGAIN!
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Down, but not out!
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What don’t I worry about?
Well, basically, nowt…
Starmer? Well, there’s a doubt,
Death? Prepared to rinthereout,
My successes? Add up to nought,
I have a metaphorical walkabout…
When ailments let me get out,
Help & sanity? I keep a lookout…
Locally, visually hereabout,
My brain gets the odd brownout,
Seizures; limbs go on a gadabout,
After-effects? An acrid gaseous eruct,
I’m used to them now, so no freakout!
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TTFNski!