Day: 6 July 2026

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Morning Clouds
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Very nearly made the bed!
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SUNDAY 5th JULY 2026
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A bad night again. Kept waking repeatedly. Gave up at 05:30hrs, and got out of bed, painfully. Mainly due to the shaking shoulder and my left knee pain. Also, a call to the Porcelain Throne. Off to the WC and passed a messy, stinky dollop of wet poo, all done in seconds. As I was cleaning up the porcelain splashes, my left knee gave a sharp stabbing pain and gave way on me. Nothing new there. I didn’t go down but caught the knuckles I burnt last night against the rails, as I  grabbed them so as not to go down. Back in the main room, I took a strong Oxycodone Hydrochloride painkiller capsule. I took the night pouch off and made up some bottles of water to keep the Catheter Contraption working. Had a good few gulps, but the day bag was not receiving any urine from the bladder. I admit this scared me a little – well, no, the thought of having to go to the A&E in a £15 each-way taxi, to get ignored, embarrassed and scowled at by the medics. Not all of them, just two.
Panic over 15 minutes later, when the wee slowly started dribbling into the pouch. Phew!
On the computer to finalise yesterday’s blog, and got it posted. Then started the Ode for today’s effort. It’s a shame that CorelDraw is not working on the new £850-plus-fitting computer properly. I hate digging into the files that the new computer lets me access old graphics. I’ve been conned again! Grumph!
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07:55hrs: Carer arrived while I was making a mug of tea and getting some corn flakes. Forgot about that. The lad gave me my medications, and I told him I’d taken the Oxycodone earlier. Also mentioned that I might be going to a home for Respite time. It’s not certain yet; I don’t know where or when, obviously. I’m telling you out of decency. Which is more than you do when all three extra-hour calls this week failed to come through, and the week before. Two wrongs don’t make a right.
Then realised he was on his mobile. He disappeared for a while and returned… I tried again, catching his attention before he got on his mobile again… I said: I might be going to a home for Respite time. It’s not certain yet; I don’t know where or when, obviously. I’m telling you out of decency. Which is more than you do when all three extra-hour calls this week failed to come through, and the week before. Two wrongs don’t make a right.
He then asked When? How long for?
Then I felt a seizure coming on and looked at the clock in hopes of working out how long it was; it was 25 past. Carer was asked how long I was out for, and it did. I came around with the usual jerk and acid flux. Clock on the half hour. Asl Carer, how long was I out for? 2 minutes, he told me. I probably misread the clock then.
I asked for a Codeine, as the shoulder must have been rattling, shuddering, and hurting a fair bit. Then I asked him to apply more Phorpain gel to the shoulder. Which he did for me. He muttered something from behind me as I was getting my two sticks for a balance test and hobbled around. Got the sticks stood up, and he was gone. The walk was a bit wobbly, but I’ve had worse after seizures before. Sat down for 15 minutes, then I went to the kitchen. It went well enough. So I got the kettle on to make a brew of Glengettie. Tasted a little off, but it wasn’t the milk this time. I reckon it was the acid reflux from the seizure that caused it. I have plainly not fully recovered from the effects yet. I sat down, took the mug to be washed, and was wobbling a bit, and my left fractured knee was giving way again. I got sat down again and stayed there for an hour or so. Feeling a little steadier now, but still unsteady when standing or walking? I hope the cause was the seizure and nothing new.
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Got back on blogging. I even found a way to get new photographs onto WP. I still cannot access the external box, but I can now get snaps on. The trouble is that I have to upload the photos one at a time from the SD card (when the new £850-plus, fitting-new computer gives me access, which is hit-and-miss) into MS Word. That has some basic editing on it, if needed. Then, save as a picture and convert to another format, in my Picture file. Then load them into WP one at a time. Life is not going well. But every little advancement helps. I’m not sure how I found out this works. The seizure after-effects seemed to help? Just the balance and knee are giving me trouble now.
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Going to have a sit down again, keep drinking to feed the Catheter, and maybe fall asleep… Oh, no, I won’t. The Carer is due back in about 20 minutes. Tsk! My 
stomach is rumbling again now. What next, a trip to the Porcelain Throne, methinks. No, my mistake.
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Midday Carer arrived. I was not in good nick mentally. I moaned about the new problems with the dentist and the Red Cross not being tended to, and asked him to watch me as I try to book the appointment as they asked me to do online.
I clicked the green Book Now swatch above. It took me straight to the booking appointment page…
Clicked the Book an Appointment tab.
It told me there were no appointments available.
Giving a number to phone them on.
Does reading about bad luck depress you?
It certainly gets to me that way!
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I’m not sure of anything now.
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The Carer, even after I explained about my distant nature and why, the seizure aftermath, just changed the subject every time. I was more confused than ever. I asked him to take some pot-noodles to the laundry sink.
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I might get a meal prepared. Unsure if it was a wise decision, as I felt well out-of-it for minutes, then it came and started all over again. Of course, I could make an appointment to see the neurologist at the QMC again.
Silly me, I forgot for a moment last time, and the first time I went to him. 2-year wait for the appointment. 4 minutes spent in his office. Told to send in a video of me in a seizure. Which took two months before a Carer was here at seizure-time, sent it to him. Not easy; he didn’t give me his email address. Carer Ejaz got it and emailed it.
3 months later, I sent it to him. Another 6 months on, I got a letter telling me they are signing me off their list… off? I didn’t really get on, did I?
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I’ll have a wash & shave then.
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