– – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – Best wishes and welcome to the new day, to you all! Unless, of course, you are reading this rubbish in the afternoon, evening or at night. Or did not get around to it yet for a few days. Any road, Welcome!
I bounded out of the bed, jumped over the exercise machine, got down and did 150 press-ups and 100 toe-touches, as the maiden begged me to get back into the bed for more carnal desires satisfactionings… – – – – – – – – – – – – – – – – – – – – Oh, all right then. 1620hrs: I woke up groggily and fumbled to take off the night Catheter bag. Then fell asleep again. A distinctly weird dream manifested itself to me. I was flying Superman style in outer space, trying to find a planet to land on. They had all gone! As I approached where Earth used to be, a cloud neared me, and I slowed down as it passed me to talk to it. I asked, “Where did you come from?” and the cloud turned into an imitation of Arthur Scargil. That’s all I can recall. I heard no reply or answer. Just thought I’d throw this into the mix, in hopes of getting a humorous comment from someone with their thoughts about it. If I could have thought of a humorous follow-on, I would have, but I couldn’t.
I woke, thinking of the dream, passed wind, and it’s a good job I’d taken off the night bag, because as fast as I could, I hastened, knocking over the Hoover en route, to the wet room and the Porcelain Throne. Before I’d settled on the pue, the flow began. Lucky yet again. Was this going to be a better day?
I mouthed a little prayer.
Had a clean up, and headed into the kitchenette to put the kettle on.
Cor blimey, it was foggy? I hobbled into the front room to go on the balcony to take a shot. But changed my mind, (I’m very good at changing my mind). Then into the junk room to take the third photographicalisation. All it showed was fog. Well, it would, as it was foggy out there this morning. Cold with it.
Ejaz arrived and set to caring for me again. Socks off, gel and ointment on my toes and ankles, and fresh socks put on. Body check, shoulders, and my back were Phorpain-gelled. Medications issued.
Jenny called and will not be able to come today to call Jake about the pension instructions. She will call later if her visitors arrive.
Warmer now, so I went onto the balcony to take some pictures as the fog started to fade, and the odd glimpse of sunshine was breaking through occasionally. The mudslide seemed large, with no rain having fallen. Not so busy today, I regretted saying that later on. I went to answer the phone, well, the mobile, I knew it would not be Jenny, but I just missed the call, they stopped as I opened the mobile. ‘Failed Connection’ came on the screen. I’ve had at least a dozen of these so far this week. Took another shot of the end of the far car park when I got back to the balcony, with the sun bursting through the clouds.
Finally, at long last, I got the computer going, oh, Dearie me! It got stuck when booting up. My heart sank. My language stank!
Turned it off, gave it a minute and tried again,
No tears, I expected it after the recent unknown problems with it. I’ll ring Jenny later and ask for Asif’s number. At this moment, I was down in the depths of frustration and anger, as From a high to the lowest in an instant.
Ejaz came again. Set up the other shaver for me and showed me how to use it, as he left to take the laundry down, I tried the computer again. And… It came on! So too did…
We started sorting out the first cupboard. Two large carrier bags were filled with fodder that was out of date, or that I could no longer eat, now that the attentions of that little beauty are back bothering me. Ejaz went down to move the washing into the dryer.
Jenny called; she will be up later.
Ejaz cleaned the Hoover and asked me to get some filters for it, to try on Amazon. So, I did.
Jenny came up and phoned NCC’s Jake. Told me he would call in yesterday… whoops, tomorrow, to see me. She is so kind to me. 🤎
Wow, the sun came out for a last blast. The fog had cleared, and mist came down later. Wonder if the sunset woi;; get through tonight? A hit me. It could only have been for a minute, if that, but it took ages to recover. I had a few more short ones later and was in bed. I recovered each time more quickly than this one.
Another go at the blog, it was a slog. I’d been that busy. Ejaz returned with another new colleague.
I went to get a bottle of spring water and saw the laundry bag had not been emptied. Sleeves inside out. socks twisted together, they took a lot of sorting out, and with it being late, and my cataracted eyes as usual got worse the more tired I got. I left it because I couldn’t see which socks were which to pair them up. I’ll ask the Carer on the last call to sort them. They used to do that, but have stopped recently with all the other jobs they have on, not their fault.
Hanging them up in the hallway brought on Dizzy Dennis. I was close to a tumble a couple of times. (Sympathy seeking? Hehe!)
I went to see what fodder was available for my evening feast. I also feasted on the lovely view of the sun fighting its way through as it went from view.
Made my vegetarian meal with care and attention. Boy, I was looking forward to eating this one with baconless bacon, garden peas, seaweed, mushrooms and a vegan lemon dessert. All, apart from the imitation bacon, tasted great. How can I describe the taste of this one?
Maybe skunk leathery soaked newspaper, hardened to a tooth-destroying level of flavourless concrete. Yes, that sounds about right.
Lots of work done. Shame about the laundry return.
But, I did learn not to buy imitation bacon again… although at a cost of great pain from .
– – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – Another day of gaffes, mishaps, & Accifauxpas. I suppose that these were the cause, reason, for the non-appearance of my beloved and much missed . And the, dragging-me-down surfeit of . Assisted by Dastardly Dementia Doreen, letting me down so often, and causing irritations, frustrations, making the day seem to go as fast as a month would. One thing after another. Only increased the mental mayhem.
05:10hrs: I jerked awake, I took the catheter bag off and, seeing the state of the day bag on the leg, made a mental note to ask a Carer why it had not been changed for three weeks; it should be, and was at one time, done weekly as the nurses instructed. This seems to have been forgotten about lately. My fault as much as the Carers’, I keep forgetting to ask them if they can do it. But with the times cut back, they would not get the other jobs done if they changed the bag as well. Frustrations of the day started here.
I hobbled into the kitchen to check on the taps, cupboards and fridge doors, nothing amiss. (Honestly)
I took a couple of snaps of the view on offer from the kitchen windows. As you see, they didn’t exactly come out very well. In fact, they were atrocious. Off to the wetroom to make an early start on the . These did not go very well this morning. Starting with the first job on the Porcelain Throne. Trotsky Terence burst forth a dollop of watery, smelly, yellowish mush! I cleaned up and went to get the toothpaste, toothbrush and mouthwash ready to use – I didn’t make it; I rushed back to the porcelain and only just in time, as another near liquid burst forth into the WC bowl. This time, I remained seated, and sure enough, two minutes later, a third evacuation of the same ilk squirted out. Cleaned up again and back to get the teeth-cleaning pot… dropped it on the floor as I felt the rear-end evacuation on its way… Again! Same routine, and back to the teeth cleaning. I was a little miffed with the diarhorrea back once more, and was a little overkeen with the toothbrush. The gums hurt, but they did not bleed too much. I was putting the stuff back in the pot, and after yet another sitting down, a messy session on the Porcelain Throne – Even I find this could not be happening! But, it was! Started shaving. By the time I’d finished, I began to struggle to stop the three teeny-weeny cuts from bleeding. I had to put a plaster on my chin, but it stopped leaking later. As did the evacuations… eventually. Just as I was squeezing the Germaloid tube onto some gauze, burst forth with a short, sharp, costly hand and finger shaking session. I couldn’t release my grip on the just-opened tube of Germalloid Ointment, and it shot out about 95% onto the floor and the wall. Poor old paid the price in pain. Then, as I was getting the new protection pants on, I lost my balance, and with some quick but stupid reaction to avoid a tumble, I hastily plopped my overweight bum on the toilet seat – which worked. Realising as I gingerly got back up on my feet, I could feel the blood running down the back of my leg. What a bleed it was from Harold’s Haemorrhoids! I ripped off the pants at the tear-points, and got the blood cleaned up from the floor, my leg and foot.
Frustrations of the day continue…
Then had to battle against my nervousness to get another pair of PPs on! I got the Health Checks done and recorded on the board, then made a brew of Typhoo Extra Strong tea. Updated the calendar.
I was washing the mug, and Carer Manprett arrived. She thought I’d just had a seizure, but didn’t say why she felt that. Gave me a body check. Barrier cream, Phorpain Gelled the lower back and both knees. Medications issued. And said she wanted to call me ‘Bapu’. That is “Dad” or “Grandad” in Pakistani-English; I looked it up later. Bless her. She also checked that the HC figures were written correctly – I’d made one cock-up with the temperature. Tsk!
Frustrations of the day continue…
I spent three hours on the replacement word listings! No blog work done at all yet. Humph! Carer Mirza arrived. He took the replacement TV remote out of the bag, and as I was telling him not to press the red button, he did before I asked. Well, that seemed to be the end of any hope of getting Virgin TV back on. The lad did not have time to fuss with it. Mirza said for me to ask Ejaz on Wednesday. He had to rush off. Can’t be helped. But I got the feeling they had no time to do anything. And with the day catheter pouch not being replaced for weeks… a little disappointed, and shamefully sorry for missen!
Frustrations of the day continue…
I managed to finish yesterday’s blog and send it off. Decided to celebrate with another mug of tea.
Started again, the ndanged short-as-a-flash ones that leave me of sync & balance. Spent a lot more time recovering than having seizures.
Frustrations of the day continue…
When I did finally get to the kitchenette, I found I’d left the hot faucet running again! Kicked in, not had much bother from her for a week or so; still, she has as much right as any other ailment.
Noticing how heavy it was raining, after making the brew, I went out onto the balcony to take some shots through the glass… the rain was pouring in through the front windows. The wheeled walkers and two wheelchairs were soaked… I got a bit wet taking the photographs. (Haha!) I had to take off the dressing gown & kaghoule & put them on the airers to dry. Back on the balcony to take some more photographs of the rain. This one came out a little better than the others, so I tried to get some to the left side of the balcony. Pointing down at the car park opposite Winwood Heights block of flats. This one was taken straight ahead to the left of the balcony. Back on the computer, and I got a call on the landline phone, it was from the Doctor’s surgery. Informing me that the hospital had changed the Ramipril Capsules from 15g to 10g, I think he said. Two years ago, I was on 30g. They did the same with the Phorpain Gel: started at 30%, then 15%, and now 10%.
Along with saving the NHS money on them, as they did in cancelling my Glaucoma operation, and I’m now virtually blind in my left eye, not one of the five promised offers of help when I was in hospital has arrived. The neurologist who saw me about the seizures wanted a photo of me in one… it took two weeks, but much-missed Carer Nimra took a video, and Carer Ejaz helped sort out how to send it via email to the Doctor, who has not been in touch at all. Adding Herr Goldenballs Starmer’s robbing us pensioners of the winter fuel allowance, I reckon they’ve made a profit out of me, and pissed me off!
Frustrations of the day continue…
At long last, I got around to starting this blog. I was interrupted by the last visit of the day to the !
After the last evacuation of the day (this is a bit misleading, cause I was up until gome 03:00hrs doing this blog, and had to pay another early morning visit), I had to get the mop and bucket out to clean and freshen the floor of blood and a few splashes from Trotsky Terence’s activities. As I tugged at the mop, which had got caught in the wheel of the trolley, it shot up. I hit myself in the face with it!
Frustrations of the day continue…
The result was agony from . I often write these quips about my luck, just for a bit of humour, tongue in cheek, getting into the proceedings.
The mysteries of Woodthorpe Court, with the hobgoblins, spectres, gnomai, phantasms, grotesque succubae, Whoopsiedangleplops, ailments, extraterrestrials, ectoplasms, spirits, Accifauxpas, rent increases, food price hikes, and the Fata Morganas, that have been sent to taunt, irritate and terminate my already limited saneness of mind? I’m thinking after this week’s, especially today’s cock-ups & go wrongs, they all might be true! Hehehe!
I started cooking the meal of the day. Oven chips, Polish kielbasa, and beetroot. I got the oven on and set the mobile phone alarm for 25 minutes, when the chips should be cooked. Then a fatal decision was taken… I thought I’d do a little word list updating. An hour into it, and I smelt the burning chips! No idea why I didn’t hear the mobile alarm go off… (I likely set it wrong, it’s the first time I’ve tried to use it… and the last time, too!) I salvaged most of the chips, another bad decision that was… they were so hard I had to soak them with vinegar to eat them, and started the gums bleeding. I got them eaten, well, no, not all of them. Suddenly, as I was standing up to take and wash the dishes…
Frustrations of the day continue…
Carer Dilan arrived. I mentioned that no one had been changing my day bag for three weeks, and he laughed. I don’t think he was being rude at all, just didn’t understand what I was saying. Which is fair enough, I couldn’t understand what he was saying later. I said my farewells, then went to clean out and antiseptise my mouth from the bleeding gums.
I stopped for a few minutes of quietism: another mistake! All I achieved from it was feeling more deeply depressed at how life is going. The best Carers have had their calls on me reduced; one does not call at all nowadays. Can anyone tell me if CDB helps with depression?
I’ll look it up… Nope!
Well, well, well, (and I’m not well, Haha!) early hours of the morning now, and believe it or not, I’ve just found bleeding from Little Inchy. Best I can guess, it’s coming from either the tube or the fungal lesion. Going to need help with this one. How embarrassing! Always the weekend when summat needs attention!
Frustrations of the day continue…
Not a lot worse than many other days lately. But everything has got to me more today. I’ve ordered some St John’s Wort capsules. Once a day, read all the reviews; it might work. Then I checked on Google… Too dangerous to take with Warfarin! I’ve tried to cancel it. They say they will try, but it may be too late! (I only ordered it ten minutes ago!) Hope they do/can stop it.
Frustrations of the day continue…
So tired, and it’s 04:00hrs now. But I want to look at the WP Reader, and I did. KITTY OF THE DAY – ANDY
– – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – I couldn’t help the first thing, being born, Getting thrown in the canal at Halthorn, Mother and Joan of Arc for being a Capricorn, I wish I could have avoided being earthborn, Mother didn’t want me; she ran off to Eastbourne, – – – – – – – – – – – – – – – My canoodling days, I spent happily in revelry, Then a burglar decided to shoot me, No praise for stopping the burglary I nearly got the sack, I was thirty-three, I tried to share things, antediluvially, Shot again, got the sack, started the despondency. – – – – – – – – – – – – – – – I’ll have to stop doing this eventually, In fact, due to seizures, each one is a shortie, Cruel after-effects, taking longer in recovery, If I ever get the blog started, midnight a departee, So far behind, hours lost, Anne Gyna is having a party, Today’s seizures are rampant, I’ve never had so many… I’ll have to try again on Thursday morning. – – – – – – – – – – – – – – –
Not feeling too well this merry morning. After four hectic, go-wrongable days, I’d hoped things might improve for me today. In fact, they did, whoopsiedangleploppery-wise. But, a new one today. A series of short mini-seizures started just before midday. I’ve lost count of how many. Each time, the recovery was taking longer and longer. Mt concentration was so bad. I was not getting the time to fully recuperate each time, and it felt like the next seizure recovery time… I’m just saying, getting back to semi-normality was impossible. I found myself going off track, which meant I couldn’t catch up on the blog. No time for the WP reader or comments again. I shall call the District Nurse if this lasts much longer. As I recall, my wanderings took me off track for the day. I split some boxes, tore them up into bags, and then took them along with the waste bins to the rubbish chute. And I could have left them for the Carer’s to do, and most importantly, in moments of clarity, I kept urging myself to get on with the Ode and blog. Then I started, and was hoovering the room and hallway… not that I can recall much of this incident. Because the seizure would not subside. Well, they did ease off from about 17:00 hours to 20:00 hours… at least I think they did. I’d taken photos and got a few on CorelDraw, but not on the blog gallery. Some I cannot recall taking. Yet I coped, unhappily and grumpily, I admit, with the previous hell-days problems. I’ve been mentally all over the place today. Yet, I still managed to jot down some notes on the pad.
I may phone Matron about this Mini-Seizure barrage in the morning, even if the seizures stop altogether – I cannot cope with repeated short seizures. Having said that, it is the first time I’ve had so many, so close to each other. During any longer breaks between the seizures, I was another person. I swear I can recall laughing and joking with Carers’ Ejas and Nimra. At times, just until the subsequent recovery was needed. And I experienced some great moments despite Sanda’s Mini-Seizures.
I’ll see how things go on Thursday.
(Thursday morning, now) I’ll have to cut down on detail, not that they were entertaining anyway. To save time. Giving myself a chance to catch up.
Health Check Monitoring this morning, Carer Ejaz double-checked the returning figures for me later on, gave out medications, diabetic socks were put on, and a body check was carried out.He checked prescription medications… ,
And no prescription ones in the wet room.
Cragnangles! Done it again!
Wrong week for the Ocado order! ,
At least I’ve got some bread now, hehe! Mor favourites too!
Seizures kicked off, I’ll say no more!
Well, maybe just, ARRGH!
Late afternoon, teatime. Carer Nimra, I think, pointed out the state of my right leg. Next call, Ejaz put some Cetraben cream on the area, and it was much calmer in the morning.
,
I took this while recovering from the last bout of Seizures; they did not return after this. The odd single one, but with plenty of time to recover. Nice!
Three snaps of the rain on the kitchen windows. Straight ahead. To the left. To the right.
The shot below was taken after I’d made, eaten and pictured the feast. But could not find the food photo in the morning to use? Another of the mysteries of Woodthorpe Court, with the hobgoblins, spectres, gnomai, phantasms, ghosts, the grotesque succubae, extraterrestrials, ectoplasms, & spirits. Receptive Aphasia Phyllis, Paroxysmal dyskinesia, Episodic ataxia, Ménière’s disease, Dark, Deep, Depressing Duncan, Peripheral Neuropathy Pete, Nicodemus Neurotransmitters Dying, Glaucoma Gladys, Stuttering Stephany, Lymphorrhea Leslie, Premordid Cognitive Impairment Inchie, or the Fata Morganas that have been sent to taunt, irritate and terminate my already limited saneness of mind. My faith, sanity, and logicality were already on the wane.
Now, I’m having to contend with Sandra’s Mini-Seizure-Stampede. Grrr, Kragnancles and Flipping-heck come to mind. But, of course, they didn’t bother me in the slightest; I just laughed them all off. There is a slight modicum of a chance here that.
Despite these Seizure stampedes, there is one thing that they could not stop me getting, HMH; I think my estimate of the division between Evil & Heaven is accurate. I may not have been as high a percentage for HRH. However, the relief gained while he was here was priceless.
I think without these High-Mode-Horis moments, I could not go on. They are better than any of the medications I’m on. The ‘Sod-them-all’ sensation that accompanies Horis is so unlike me; I’ve always been a worrier. In fact, I’m now worrying how I will cope without them. They came from an uncontrollable, weird entity… my own brain. How, why, I know not?
The only Anti-Depression-Darius Succes, without it, I’d be in a right mess.
Sorry about that bit of self-analysis. I wish the Neurologist would read this blog.
