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MUST BE THE WORST DAY EVER – UP TO NOW
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LOUSY NIGHT – CRUEL MORNING
Managed a few moments of sleep, kept waking up in a right peed off mood. Just needed sleep, but the demons and evilf-fieindly bad-luck-bringing thoughts of my own concoction seemed unbeatable today.
Rising from the bed and hobbling my way to the nocturnal Catheter pouch on the floor near the recliner, my right leg gave way, and once again, as yesterday, I was fortunate enough to lean towards the chair to land semi-softly and injury-free. 
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I was still sitting in it, and trying to nod off again, as the intercom chined out its “Oh, Susana” tune. The knee gave way as soon as I stood up, and by the time I’d got to the panel to admit the Carer, it had closed down. I waited a few minutes to see if they had been admitted or would ring back, then returned to the recliner, expecting the Carer to come in. “Oh, Susana”, rang out again. This time, I got to the box a bit quicker and in time to let them in.
Carer Mizra appeared, did a body check, and creamed or gelled the areas in need. Shoulder, back and genitals. Then Mizra got the medications issued.
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I was pleased with how the new computer was working. When first opened, both external drives were accessible! But, of course, within a few minutes, they had disappeared. Back to normal, then. The hour-and-a-half Carer visit didn’t happen, the same as yesterday. 
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1) The computer, specifically CorelDraw, froze as I clicked export for the Cartoon to go to the file to use here.
2) I could not close down by the regular route. So had no choice but to turn off at the power sockets.
3) But I could not get the computer to reboot.
Nothing but trouble since paying £850 plus fitting to get this computer, and I could not find his telephone number!
But knew that Mizra had it, as he liaises for me.
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4) Carer Andrew made the short midday call. I asked him to ring Mizra and ask him to call the engineer. No reply, so I don’t know if he did.
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5) While he was here, I tried a couple of times to get the computer back on, but both attempts failed.
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6) I found the Carer lying in the hallway on his mobile.
I thought he’d gone. I asked him again to contact Mizra for me. No response.
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7) I did get the loading to go as far as the opening label screen, but this one usually comes up first… so it was not a surprise when the ‘Working Circle’ appeared and the mouse arrow showed on the screen. It stayed like this for over an hour! Demoralising!
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8) I turned everything off at the power again and lost the TV signal in doing so, and heard a series of Beeps coming from the hard drive.
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9) All off again. TV was not affected this time.
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10) This had to be my last try. I was so downhearted.
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11) Then, I got a telephone call from a something navigator, from the Doctors Surgery. She mentioned a meeting with advisers I’d been invited to via email. There was a vague memory, but nothing certain. The lady explained it was about sorting people’s needs out, and the best way to do so. I jumped at the chance. I think she said someone would be calling to arrange a meeting.
Linda, I think her name was. I mentioned my wish, if possible, to go into a home. In hopes of relieving the tensions from getting nothing sorted, with problems being added almost daily, which challenges my sanity,  health, and my ability to cope.
12) Today is a good example. The early tumbles. The computer is playing up yet again. No hot water. 4 weeks since my last shower or shopping assistance. Adding to the Banking, British Gas, Virgin Media, the new Catheter’s lack of information or instructions. No help was given with managing procedurally.
13) Do I carry on with a weekly day-bag change? Is it safe to use with a nocturnal pouch fitted?
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14) Not that I could put photos on the blog, anyway, both camers are broken!
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14) Now, my prime love/hatred, the new computer, cannot access CorelDraw or Excel. So, there are no graphics or photographs that can be used. Other than any already in the WordPress gallery.
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15) I rang the District nurses for help on how to manage the new Catheter, who told me to contact the QMC. I went on a little about the situation I am in.
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I then rang Jenny, who rang back. But I was not really with it t the time, in fact, I had a nasty seizure after making the call, mind blank. Extra confusion.
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16) I received a call back from the nurses while still a little out-of-it. I was asked if I am really interested in going into a home. I think I took this opportunity to get my thoughts out, and they will ask Matron Jackie to see if she can get the ball rolling. Brilliant. Cause things are getting worse here now. Problems increasing, solutions decreasing.
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Movements from the rear end started again today, all in Constipation Conrad mode. A bit of blood each time from the haemorrhoids. At least no accidental evacuations with Conrad.
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I’ll have to do only the Ode. Oh, it’s been such a busy, annoying day; I’ve not done it yet.

I suspect this blog holds ampullosity?
Changing moods bring ambivalency,
Spent most of the day crestfallenly,
Spent many sessions self-critically,
Problems showing no curability,
Concentration, showing a deficiency,
Hopes, needs, logic, all seem to disagree,
Depression increases, diurnally…
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Is life, like a politician, an effigy?
Not realistic, no ecclesiology?
What happened to youth’s excitability?
80, first time owing for your electricity?
Into the mist, goes you equilibrity,
No more mental or physical euphony…
I used to hope for an epiphany…
But life now proves more euphuistically,
I also dreamt of finding eudaemony…
I got this depressing ennui!
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It was once suggested by Dr Neurology,
To help me electroencephalographically,
But that was in September, 2003,
Then a stroke, TBI, and Cancer hit me,
Dr Neurolgy again saw me in 2023,
Sometimes I can think with clarity…
I hasten to add, this happens rarely,
Then my mind goes wanderingly,
Mind blanks can hit anytime, lastingly…
or for a few moments, mysteriously,
Moments too, of great falability,
Frequent occasions of mental obliquity,
With unstoppable times of neurotomy,
Hoyrly changes to me nimiety,
Dementia turned me flibbertigibbety,
Duodenal ulcer, hernia, verbal nugacity,
But can I face the nitty-gritty?
The crux of the problematic matter?
Slowly but surely going détraquée!
I’m now an ace at dontopedalogy,
Few teeth left, crinkled skin, pilgarlicky…
Had enough of life’s woes & mallarky,
Being as I don’t want to sound sarky…
To avoid moaning and negativity,
I blame it on my pfropfschizophrenie!
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Lack of control, of happenings & events,
My ever-changing consciousness,
From unawareness to utter cluelessness.
People I talk to will see/hear a difference…
No in-between, Depression or High Horace,
Decisions to be made, I’m on the fence,
Knowing danger, what’s my response?
Forget; as it dies in my memory disperses,
Involuntarily, to my memory burners,
Lack of control, of happenings & events.
Make life a struggle, that’s so intense…
Worries, problems, Catheter, fears…
Self-hatred, incapable, many mental fratches,
Solutionless, can’t batten down any hatches,
I hate my changing moods & responses,
Often say things I find erroneous,
Mostly to myself, & of course Darius,
Important dates, numbers, emails…
Texts, etc., that no one can solve,
Fade away, making me feel injudicious,
I used to think that life was so precious,
Now it’s approaching worthless,
New computer, camera, faith, & hopes,
All kaput, I feel so inefficacious,
Really, my outlook is hopeless…
I hate my changing moods & responses.
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I’m Struggling!
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