– – – – – – – – – – – – – – – – – – – – – – – – It is now Sunday morning at 01:35hrs. I’ve had a bad day with the concentration, mind-blanks, a tumble, and the mind has not been my own. Worrying, which comes oh, so easily nowadays, has played a big part in my Saturday sadly-sinking morale. The arrival of the 2nd food order in two days brought on feelings of guilt and shame. Shame that I cannot seem to be logical about anything at all. This afternoon, when I made a snack and was washing up the few pots used, Weariness-Willy walloped me. I could do nothing but get sat down and drifted into a deep sleep that even the daymares did not spoil – for while dreaming… the usual, distorted things from the early years, somehow I knew I was dreaming and was pleased that I was sleeping. Had Doreen’s Dementia played any part in this catastrophically depressing, mind-wandering Samstag?
First photo of the day. Followed later… By three more.
Wash and nearly dressed. No trews was put on. I’m not going out anywhere, so a relief for the and me!
The accidentally ordered food arrived…
Porridge and noodles stocked up!
Special Prices on Surf.
Fridge overloaded.
Battered Sticks on offer.
Hello, I’m wee-weeing well!
Then came the mind blank, the big one. The Carers came, but I can’t recall much or who.
I had a snack of sorts
A pot noodles, and a pot of potatoes.
Weariness-Willy Attacked. Turned off the computer and did as the body told me to… I
Woke many hours later and arrived to destroy my daydreaming. This is when I think I. waffled on a bit. But maybe not? Yes… I did!
Got back on the computer. Went to make a brew..
Took some night shots; I’d missed the sunset
Humph!
I went back to the computer and saw signs of my having been nibbling rather a lot in the bin…
How could I do that and not realise it?
I worked on this blog for several hours. It was suddenly… to me, 03:20hrs! Where did the day go?
Made some nosh. It was horrible!
Got down in the c1966. charity shop bought, second-hand, wincingly grotty, beige coloured, not working, crumb-covered from the nocturnal nibblings, itch-making, uncomfortable, virus breeding, easy-to-fall-out-of, recliner.
The legs and ankles were looking much improved.
Put the TV on, anything with subtitles… But it was not needed. Around 04:00hrs, I drifted off into the land of blissfulness and peace. But, as tired out as I felt, Sweet Morpheus mocked me and woke me up with a jump and jerk several times. The Git!
I woke up (I do that sometimes, you know) a little later than I intended to, but Sweet Morpheus allowed me to fall back asleep again earlier. I got the Night Pouch off and collected the things I’d amassed last night in readiness (blimey, I sound so organised this morning… don’t I?) and the wee-wee bucket to empty and sanitise and hobbled painfully (The sole of the right foot) to the wet room to do the. Which were slow and painful, especially the stop to utilise the .
However, I had an FND moment when I got around to dressing… I actually believed that a person was standing next to me! I didn’t recognise her; she didn’t talk but just melted away into the ether as I got over the shock and turned to look at her. It was so real, I looked around for her. The door was closed, and at that instant, I had an out-of-body experience that lasted only a few seconds… this is impossible, of course, but in some way, I felt I was watching myself and was not myself, but someone else. Weird!
arrived, but I didn’t tell him what had just happened. I felt such a fool and too embarrassed, too! And here I am now, telling the billions of tellurians and my vast amount of followers on WordPress about it! Still, my legions of followers are both decent lads. Hehehe!
Poor lad looked all in, shattered at the end of his long shift. It’s a fact that when the chap takes off his glasses, releases long, noisy yawns, and falls asleep while I’m talking to him, he needs his bed! (Only joking!) A grand bloke & Carer. Not that it stopped him from sorting out the medications for me. Then he departed; after checking the taps (faucets) & stove. I hope he’s not coming down with anything! And his insulin level is okay. He’s such a nice lad.
I rushed to get the Thursday blog finished and posted it. Then it was time to get ready for the visit to the Coppice Hospital.
All dressed in the outside gear. Today is the first time I’ve worn trousers for about a week or more. With problems, it’s rather painful being trousered. So, fingers crossed that today’s little trip out will not agitate the situation in the lower regions.
I got down in the lobby, with ten minutes to spare before the lift from the was due. We took the long way around this time. Still got there in plenty of time, though. I was dropped of in the car park and made my way to the reception door. A lady came to let me in, and by the time I’d adjusted to a comfortable sitting position with , the nurse arrived and said follow me. Through the corridors, but I nearly lost her; she was fast! The sole of the foot and dangling tubes from the catheter slowed me down. The lady mentioned that I had not brought my carer with me, and why not? I explained that last time because it was my first session, hate carer helped me out by coming with me, and that’s why he was so sleepy. I couldn’t ask him again. Fair enough, she said.
No messing, sit down, and the Q&A session began. It took a similar format at first as the last session. I think I was doing as well as last time. Then the drawing, writing, telling time and mathematical tasks were done. I feel I did well on the words, naming animals, people etc. The maths buggered me, though, as is usual.
The next hour or so is just a haze. I remember having to check the , as I thought it was getting fuller, pulling on the tube and poor Little Inchy. The lady said; Finally, what can you remember about the first test you did when we started? I thought for a while. (Hoping something would trigger the brain), but no, I had no idea. This had obviously happened before. The lady tried to help, and an example: Was it Brian Douglas, Johnson or Smith? I had a guess. Then another tip; Was it Milton Close, Avenue or Road? I guessed. Was it number 72, 44 or 39? Aha! I got that one. It was the number of my flat! Was it Dorset, Falmouth or Dorchester? I guessed! Obviously, the names here are made up cause I can’t remember them.
All done; no idea how I did, but felt okay, and as I walked back to the reception, the pain from the sole of my foot was much easier. There was a wait of about 50 minutes for the Easy-Link to collect me. But I had not taken the crossword book and pen with me. So I sat quietly in a too-low chair… Oh, I’ve remembered I missed something that happened in the session: I told the lady I had made a list of unusual happenings and handed her the notepaper… She handed it back to me; I had taken the list I’d made for the visit to the doctor. I rifled through my pockets and found the one I wanted to give her, and gave it to her. She asked a couple of clarificationalistical questions, and it was not mentioned again.
So, there I was sat, sitting in the chair, and… Zzzz!
As I woke up with a jump, the lady from the reception was coming to me; she had seen the Easy-Link Minibus arriving. Walked out with me to have a word with the driver about something. We were soon back at the flats, quick route taken, gave the driver a choice of drinkies from the cans from within the three-wheeled walked bag, thanked him and got indoors and up to the flat. Phoned Meridian Care; to let them know I was back home.
Started to cook some food, and the sunset caught my eye. I wasn’t throwing the eye, Haha!) Over the half an hour I was cooking, I took four photos with the Fuji camera (It’ll need six new batteries shortly; it is an old camera, but highly appreciated). It was given to me by Carer Richard when the Canon camera crapped out. Now the new Lumix has bit the dust, and Fuji continues to work but is too big to take out with me.
I thought did a fairish job.
Then one of the houses below.
Eerie one this?
Arrived, and we decided not to add the yet, as it was only 20:00hrs, and @I need to make my meal. Which is dodgy with a walking stick and carrying the tubed catheter pouch at the same time as prepping food. I was working on this blog at the time and knew it would be hours before I got the meal. Although, I got it prepared and in one saucepan to make it easier to get served up. I’ll try to fit the bag myself later.
Hours later, it came to now. I’ll get the nosh sorted and then the flipping added on… I hope.
I’ll be back in the morning to finish this off. I hope!
I made a bigger meal than planned. Ate most of it. Flavour Rating: 702/10.
Then, I to . It was a painful experience. This simple task left me with , , , , and even the kicked-off, with a vengeance. And, apart from that, I had been doing so well with the lack of ailments today. Humph!I even pulled at the inserted into Little-Inchie’s tubing and started stinging and the .
I’ll try to remember not to add the night bag myself again. It’s not worth the pain and lack of sleep this caused.
GETTING TO SLEEP – Hah! I suppose, looking back, it was rather comical, really, all the same. After fiddling with the tubing in Little Inchie, adjusting the Protection Pads down to avoid contact, and finally finding a position that was less hurtful… Then of all things came into action! Which moved the tubing, bringing back the twinging pains and started the Fungal Lesion leaking again! I went all the adjusting things rigmarole again. Having nearly found a more comfortable arrangement... I then needed to utilise the .
I gingerly rose, Catheter Night bag in one hand, walking stick in the other, and hobbled to the wet room. Git there in time, at least. The evacuation was another of the gushing, watery, messing, pongy jobs. You know? One of them uses up half a toilet roll to clean things up afterwards?
After stemming the bleeding, cleaning and medicating, I returned to the £300, second-hand bought, c1968, nauseously beige-coloured, not-working, rusty, rickety, crumb-holder of a tatty recliner; and went through yet again, the process of finding a less painful position to settle into.
had calmed down, but unfortunately decided to have a go at me. Early hours of the morning, I was almost at the point of drifting off at last… There was a loud dull thud from the flat above. I pondered and worried over this; Is the new tenant who moved in taken a fall? It was no good, I just had to go up and ring their bell, just to see if he or she was alright… I struggled painfully out of the £300 second-hand, c1968, cringingly-beige-coloured, not-working, rickety recliner and caught my balance. Put the hearing aids in so I might hear if I got any reply when I rang their bell. got the stick and was about to go to the hallway… fearing the worst, I just had to know if they were okay and get help if not. Then I heard music on TV, the radio playing. So it seems whoever is up there is okay. Which was a good thing. Back into the second-hand, £300, charity shop bought, crumb-retaining, microorganism-microbe producing, gungy, moth-eaten, beige-coloured, non-working, bacillus encouraging, incommodious, Haemorrhoid Harold testing, c1968 recliner, and once more went through the getting into a comfy position routine for Little Inchie and the .
Then moments later, I realised it was time to get up for the Iceland delivery anyway… And to think I looked forward to retiring and having a life of peace, rest, pleasure and comfort!
Be interesting seeing how they change the catheter. Take my Warfarin Blood Sample, Drain the nest sticky DVT vein, and inject me with Enoxaparin. I’m looking forward to having the next stroke. Hehe!
As I bounded back into imitation life, I remembered I have no Lumix Camera to use. I tried to last night on the meal and sunset.So, today it gets ignored. Boy, I’m glad Carer Richard gave me his old Fuji camera. I’ll get some batteries in it. I’ll give it a go later. I removed and . During which, I observed, felt and swore about that agony the sole (Just under the toes) of my right foot was in! Another new ailment had arrived! No name was given to it, cause I pray it is only going to be a temporary one. The toes were pale and white, and the boot and ankle looked almost light brown. When I wriggled the toes, only three of them moved? When I stood up, my balance was all over the place, and the pain, just from the one foot, I classed as a 3-rating. Later in the day, it did ease off – until the evening, around 19:00hrs, then it returned? I was hobbling somewhat.
Came to sort the medications. He told me today was the replacement day for the . I hadn’t any idea… the damned is not easing off. I’ve got the second assessment tomorrow afternoon at the . Oh, that reminds me, I looked up the FND thought.
Functional neurological disorder – Findings
Functional neurological disorder (FND) describes a problem with how the brain receives and sends information to the rest of the body. It’s often helpful to think of your brain as a computer. In someone who has FND, there’s no damage to the hardware or structure of the brain. It’s the software or programme running on the computer that isn’t working properly. The problems in FND are going on in a level of the brain that you cannot control. It includes symptoms like arm and leg weakness (Yes) and seizures (No). Other symptoms like fatigue or pain (Yes) – are not directly caused by FND but are often found alongside it. It can cause a range of symptoms, including Problems walking (Yes) – heaviness down one side (Yes) – dropping things (Yes) – feeling like a limb isn’t part of you (Yes). I’ve got all of them. If you have FND, any scans you have will show no damage to the brain to explain the weakness.
Well, I can’t read these above on here, but the spy-glass helped me to. Caused a spell of depression as well afterwards. I’ll not learn anything about it tomorrow, it’s just another assessment, but in a week or fortnight, I have the first Brain Scan.
Doing the , I had an . I managed to fit in an . No real harm was done.
and I think it was called. The notes on the pad when I got around to doing this bit were of no help at all. A Scrawl!
I must have had for ages; cause hours of the day had been lost. I put this on the list to tell the nurse tomorrow.
I got the batteries in the Fuji camera, and it worked a treat.
I did an order for Ocado for next Wednesday. Then the Asda order that I’d forgotten all about arrived.
The kind driver took them into the kitchen and got them where he could manage to; there was not a lot of room in there. Damned decent of him.
Anywhere was alright with me.
The guilt… the Guilt! Haha!
Aha, got some washing-up liquid this week.
And to aid my following the nurse’s repeated commands and instructions. I’d got many bottles of spring water in.
Did the evening medicationings. I waffled on a bit, sorry mate.
Rang to confirm their lift for the afternoon tomorrow. Nice!
Got some sausages and made sarnies with sauce. Too tired out and stressed to bother making a meal. Wanted to get it done and eaten before the last Carer calls to put the on and medicate me. Hehe! The meal was okayish. Say, a 6/10.
arrived. Did the tasks needed. Had a mini-natter… well, moan from me. Haha! Richard checked the taps and stove, then took the waste bag with him as he departed.
The days started painfully – I needn’t have said that, had I? Hehehe!
The darned Lumix Camera was still not letting me take any photos!
Although, in the afternoon on what must have been close to the 12th.
try-to-get-the-bloody-thing-going; When I received some
official-looking brown envelopes mail, it did.
But it wasn’t bad news! & were with me on awakening… I’d be lost without their little morning greetings.
– – – – – – – – – – – – – – – – – – – – – – – – – – – – – –
The day of memory loss, disappointments, getting little done, , (Particularly her!), a few confusions of attacks via and a few bursts of feeling for no particular reason whatsoever. As per usual, made what should have been a better day worse. The Lumix playing up ruined any idea of a decent day’s photography. Yet apart from the odd depressions, which didn’t last long, but there were a good few of them, I seemed to press on regardless.
Arrived during one of my ‘up’ periods. Not that I can recall much. And why not? I’ve literally lost the notepad I’d been using for over half of the day. Likely thrown out later when I got the shock of the letters arriving. I reckon we had a natter and a laugh. I think he reminded me to ring Easy-Link to confirm the lift was arranged for Thursday’s visit to the Coppice Hospital… but that could have been yesterday.
Carers (I think) Sam called. Then Carer Charly. She took some photos of the Sunset. I tried the Lumix again, and it let me take one shot!!! I may have worn it out last night in taking so many shots of it? Hahaha!
The thicker envelope delivered was opened first.
Aha! An appointment for the first Brain CT scan had arrived. It’s for Friday, 24th February… I’ll just recheck; hang on… Yep, it’s for 2023. Luckily, Carer Sam, I think it was who collected the mail on her way in, read it for me. The print was a little small, and Cataract Katie is getting worse every day.
The picture of the CT machine,, was just like the one the QMC A&E took a scan of my bladders last month; it was just the circle bit…. or was it the month before?
I remember falling over in there, trying to get my leg up and over, so they could get to the bladder.
The map of where to go was even smaller in scale.
A long list of things that need ‘Special Attention’, included Diabetes and Neurological Conditions. Of which, I have.
I must remember to ask Richard if he can make a list of anything changed in my ways to take with me to the nurse at the Coppice Mental Hospital on Thursday. I keep forgetting to ask him. Or have I asked him yet? Worra-life!
I managed to get through the Easy-Link people and got the lady with the voice that suited my ear-holes. Checked and confirmed that I had booked a lift for Thursday at the Coppice and then made one for the 24th for the Brain Scan.
The other letter was telling me I had failed to attend the Doctor’s to have an INR Blood Test and had to do so urgently. I must contact the Doctor to book an appointment immediately. Well, being as they have been coming to my flat to take it for two years now, I assumed they were going to continue to! Also, as well as, besides that, No one told me anything? Does the nurse’s striking have any effect on this scenario?
Now, if I snuff it via a blood clot or stroke, heart attack, or bleeding to death… according to the unknown because it’s not been taken level of INR is too high or low – if anyone reading this can investigate for me, please.
Naturally, you may not find out cause I’ll be dead, won’t I? I’ll be busy at St Peter’s Gate logging into whichever department they send me to. I’m hoping St. Peter doesn’t want to send me back to try again? That would be horrendous… one lifetime of misery is enough for anyone. I shall refuse to go back, and if he doesn’t like it… well… I’ll sulk!Hehehe!
Better get some nosh sorted out, then.
Which I did – no photo, of course; the Fuji needs new batteries. Tsk!
AN UP AND DOWN DAY TODAY Depressed one minute, singing away five minutes later, looking for figures and faces in the clouds… Then for some unknown reason, I got such a sharp pain from Little Inchie, and I was not moving, just sat making my usual mistakes and errors on the computer? Unfortunately, off and on, they have been pestering me all day. They still are. Humph!
When I burnt the meal, the third time in three days, a reason or cause to feel down you’d have thought? But no, I just drained and wrapped the burnt stew in multiple thick waste bags, and I took them to the dustbin. Returned to start making another meal.
I couldn’t find my favourite smooth writing Paper-Mate Ink-Joy pen. There’s no logic about the panic I got myself into. Jesus, I’ve got no end of pens I could have used – But No! I just had to find it at all costs! Nothing else got done for well over an hour; nothing else seemed to matter! Until I found it underneath Hopewell’s c1962 falling apart splintered cabinet, right at the back against the wall.
This was not going to beat me, oh, no! I got the best of the picker-upperers. Picker-Percy.
It’s been used almost daily for a couple of years or more, but still working well. It can (and does) pick up individual tablets, even the smallest ones, the Beta-Blocker, Bisoprolol Fumarate, and I-litre bottles of water. A great friend indeed, especially when in need. But, this time, and not Percy’s fault…
I foolishly leant a little too far forward in my effort to fish the pen from the darkness beneath… By the time I’d got it, a few things had taken place…
❶ As I leant down, I squashed against the catheter tube and yanked it out a little… ❷ The swearing and cringing did not help the pain in any way, but I felt a smidge better. ❸ I got Metal-Micky (the four-pronged stick) and went to the wet room to stop the bleeding from Little Inchy. Got some new Depends on, and back to the problem at hand. ❹ Stooped and lost my balance, ‘Clunk’ as my head hit the loose door on the cabinet… ❺ Then back to the wet room and put some Savlon on the forehead, and once again, to stop the bleeding from Little Inchy. Got some new Depends on. I tried to assess any damage to and back to the problem at hand. I got the pen retrieved and should have been more than content… Hah! ❻ It was a different pen, not the Paper-Mate! That’s still hiding somewhere. Hehe!
Carer Jozeph, Carer Sam, and Carer Sarah called up to now. (20:00hrs) A late one to fit the later.
Only been two visits up to now.
Here are the few photos taken today?
♫ FOOD GLORIOUS FOOD ♫ DELIVERED I was soi lucky that Carer Joseph was here when they arrived. The driver left them down in the main lobby! Joseph fetched them up for me, for which he got some cold coffee and all my thanks for helping.
and the last of the fodder
I took this early after getting up to try and catch the shadows from the other flats as they stretched across the tree copse/.
Going to get my evening meal now. Before the night bag gets attached.
Adding the tasty ersatz bacon to the tomatoes, Mediterranean 7-vegetable sauce, and sea-salted, chopped tomatoes with basil in the saucepan. Stirred continually ( as the hot water tap was left run cold, Huh!), and got it served up on the tray.
I got settled in the £300, bought nine years ago from the second-hand shop, Harold Haemorrhoid testing, repugnantly beige-coloured, crumb containing, virus-breeding, acne-giving, rickety, itch-producing, back-pains-guaranteed, none-working, recliner. Two of the over-floured bread rolls to dunk in the juices. And the last of the cheap Strawberry jam imitation desserts. I wallowed in the feast, slowly enjoying the flavour. The Taste-Rating for this one was 8.9/10.
after mayhap the best-flavoured nosh all week came the job of washing the things up from its creation. It took me ages to get the pots clean. Thank heavens I used a throw-away tin foil tray in the oven; that made things easier not having to scrub the oven dish.
After getting things sorted, I dipped into the Sprinkle buttons for a self-treat. Seemed a good and earned idea to me.
Sorry I did now! I popped three of the rainbow-covered bits of chocolate into my mouth.The pain and blood from the broken tooth that one got lodged in, indicated that doing this was not a good idea. It wasn’t! Tsk!
I took these photos of the late sun setting. Bootiful!
A distance shot… Then a close-up of the departing sun over the horizon.
Came in, and to the for me. He emptied the urine bucket and checked that the flow from Day Pouch to Night Pouch was working. All good. Richard checked the taps and stove were not left on. He pointed out that I’d taken the antibiotics at the wrong time. At the time, I was convinced I was doing right and could not get my head around the problem, but accepted his findings without question. Somehow deep in the depths of the controlled brain, I was more confused than ever, however: In the morning, when I thought about it, it was so obvious to me that the lad was so right. How these changes in awareness come and go annoy me. Then I get angry with myself. Not as angry as when I do stupid things, like leaning forward and bending, kneeling full well there is a risk of a visit from or at worst, an . Then get pee’d off when it happens! Grrr!
Another example of Inchies newly acquired ineptitude, incompetence, inadequacy and incapacitation are shown above. Not one of the best selfies I’ve tried for. Hehehe! Still, I might use it on the blog, mayhap as an ode-topper?
Safe Sleep, with Bo-Beep, After counting the sheep, I hope your sleep is deep… Dream of nothing grossièreté, Find happiness in a heartbeat!
Due to circumstances beyond my Dementia, physical capabilities destruction, frustrating lack of control of my body and brain… Well, it sounded good to me. It’s true! Hehe! And the visit to the Doctor, which is just a blank in my mind now. Thanks to Dementia Doreen, I have never been so confused in my entire life about what going on around me as I do this morning (Friday); Time forced me to limit this Inchie Today diary. That old killer, ‘Time’, forces me to do this, Hope to be back to the old format later. Broken sleep dominated the day – as was being demanded from my body and brain!
– – – – – – – – – – – – – – – – – – – – – –
Today, mostly stolen from memory, distorted and warped by the avaricious, covetous, cruel Doreen Dementia, and hassles and complications from the
I’m only putting in what I think I know happened today. Up and in the wet room to tackle getting the ablutions done in readiness for the visit to the Doctor. Lift arranged with the Easy-Lift charity, volunteer drivers and a reasonable charge.
This session went fantastically well. Well, apart, that is, from the controlled evacuation. Not so much a torpedo, more like a nuclear submarine! Hahaha! But no bleeding with it. It felt so good to get a shave, shower etc., after so many days of inability to do so. But, this and the medicationalisationings, then dressing was timed. It took me 2hrs-25minutes! The longest ever! But at least I’m still doing it on my own. The main reasons were the catheter, extra time shaving, my not having had a shave for days, and the struggle.
I’m dreading it hewn Doreen gets worse, and I have to pay for some carer to clean me. When it comes to this stage, I don’t think I could cope with the, and perhaps , maybe even still having a catheter fitted as well, frightening! As the ever-present oink ruling the roost, I would not want to cope. Of course, it’s going to come. Not that I expect to be aware of it. So I decided to try and make the best of things until then.
Lost the plot there… off subject again. Sorry.
. Emptied the brilliant-looking urine, not a sign of any blood!
. Made a brew, and I took this morning’s view, too!
Arrived. A little vague on this visit for some reason. Maybe we talked of things that worried or concerned me, and I went into denial mode and filed memories away from my own grasp? But this happened later in the day at the Doctors and is a new trait that conceivably I can expect in the future?
Got the outer clothing on and readied to go to catch the lift. I checked the taps, heating, stove etc., and then I rechecked them. Down to the lobby. The Easy-Link minibus arrived two minutes later. And ~I was on my way to Carrington and the Sherrington Park Medical Practice. The fiver dropped me at the entrance; I thanked him and went into the surgery with my EQ telling me this would not go well. Naturally, no details, He sometimes gives a type of upset, jealousy, fear, greed or something of that nature as a guide for me. He was right!
Worryingly, a ‘Haze’ Came over me when the man spoke to me when I got into the room with him. EQ was talking gibberish to me in the background throughout the meeting? As I said, this was worrying! No idea why or what caused this, but I spent the rest of the day in this state. Utter confusion, what the hell was going on? Was all I recall thinking?
Bits and pieces of the session remain, but others are vague and mixed up in the ether of my brain. I may not have these memories in order, but they are all I came out of the hour-long meeting with, and I’m the least confident about actually having happened.
❶ I’ve got to stop taking Ibuprofen. ❷ Something about letting me have some Haemorrhoid cream. The Doctor consulted, and she said I didn’t need it? ❸ He wants me to take the BP twice a day & record it for him. ❹ I’m sure they issued a prescription electronically for some anti powders. I mentioned that I could not fetch them today as I had an Easy-Link picking me up. ‘Why can’t you?’ He asked. ‘Because they cannot digress from the arranged route, or they are not covered by their insurance, you see.’ I replied. Your Carers should fetch it then. ❺ The only other bit I recall is telling him about the problems with the catheter, but he stopped me, ‘You must talk to Urology about that. Phone them; the number is in the book and on the web!’
I departed, and got an Easy-Link lift home at a reasonable price, thinking clarity would return once I got home. It didn’t!
. I took this photo when I made a brew of Glengettie. I’ve no idea why, but it may come back to me.
My body was demanding sleep all of a sudden. I agreed and got the clothes off and the dressing gown on, and with drooping eyelids, I got into the £300, second-hand, c1968, charity shop-bought, eyesorely-horrendously grungy coloured, Harold Haemorrhoid-testing, easily-falloutable from, unfit-for-use, not working, recliner, and was in a deep sleep very quickly.
The carer came to give me Peptac and Paracetamol. I was soon back asleep. Zzzz!
The Night Carer, Sarah, I think it was, came to put the on to the day pouch.
But; Houston, we have a problem…
The rubber attachment on the end of the , was longer on the end of the day pouch? So the gal could not possibly even try to have . Without her fitting a new day pouch. Which is not on her remit. The gal was a little concerned about what to do. I settled her nerves and told her to leave it. Hopefully, a nurse is calling tomorrow to check the new catheter; and may change it for us.
I nodded off again. Up around 01:30hrs to make a meal. Food balancing on my belly, Wobbling on my knee, I turned on the telly, Contented gastronomically,. Again, I felt sleepy… There was no stopping me… Zzzz!
I woke at 041:00 hours, still feeling tired. Had to empty the pouch and use the . So I stayed up.
06:20hrs: Woke and removed the Catheter Night Pouch. And well-bloodied it was. Tummy ache.
Amazed at how many times the photos of the Catheter Bags seemed to have faces, figures of animals, and other objects on them. Can you see the mousse in this one? I’m worried about the pains still coming from the guts and Little Inchie. And, of course, the thick blood in the urine.
Emptied the Night Catheter bag in the WC.
Took this photo when making a mug of tea.
Carer Richard arrived, and he got the medications given to me. Told him about the blood in the urines again and how it was even redder than yesterday… or less brown, mayhap.
The blood coming into the Day bag seemed thicker than ever?
Back to the Wet Room to use the Porcelain Throne. Found that the bleeding from Little Inchies Fungal Lesion was worse than ever before. The tube was tugging at it. I imagine.
The Co-op delivery arrived. Not a lot this time.
Yee Gods! The Day Pouch had filled up already, and I’d not been drinking the water, cause I was sorting the food out? Better get it empties…
The overloaded pouch only let me release a tiny drop of blood & urine. Then the release valve seemed to stop working! I could be in trouble here cause the bag is so full will only block the bladder with the stake blood in it. No wonder I had a tummy ache! I tried to ring the Meridian Office, but no answers to the three calls I made. So, I called the District Nurse’s number. As I was explaining my problem… The bloody valve in the catheter opened itself… Blood and urine-soaked slippers, socks, and feet, as well as over the carpet. What a state I got into cleaning it up… well, trying to! You can see the blood clot in the above picture that shot out first. followed by a torrent of urine & blood. Argh!
The lady at the District Nurses HQ said she was sending someone around to take a look at things for me and rang off.
I continued to try and get myself, and the place cleaned up. But the stretching and bending, even though I was using kitchen towels wrapped around the picker-upperer, started Back-Pain-Brenda, Anne Gyna, the Mystery Rib Pains, Shuddering-Shoulder-Shirley and a lengthy Dizzy Dennis attack off. I was not in a good state at that moment. Half an hour later, I was washing the wee-wee bucket. and a nurse arrived, a pretty nurse, too. I was in a bit of a state panic-wise, so didn’t get her name… or maybe I did but forgot it. Yes, that sounds likely to me!
The nurse listened while I told her the sequence of events. Took a photo of the blood clot and date on the guilty pouch. Most annoyed at the Catheter Pouch being changed, asked me if they knew (Carers, I imagine) that the bag must be changed every seven days. That’s what it is designed for, no longer; seven days is the limit permitted. Doreen Dementia intervened, and I could not answer her. The pains were not helping me to concentrate. She told me to ring if had any other problems.
An interesting photo here. No idea what it’s of. Hehe!
Gotten Himmel! The new bag filled up quickly again.
Emptied the pouch.
Took a snap of the much-missed-visiting tree copse.
I see an image in this picture of the day bag. Can you?
This one reminded me of Telstar.
The new shape of the pouches was noted. No faces or images were seen.
Back to the Porcelain Throne. Wearing the just emptied day bag. The blood flowing in looked like veins. Haha!
The bag keeps filling up so quickly?
An hour after emptying it.
Carer Sam arrived on a safety visit. Later, Carer Kara arrived for the late medicationalisationings. We had a quick natter, she was very busy.
Carer Richard came for the late check. He got the night bag fitted.
I pressed on with this blog until around 02:00hrs. Then got my head down.
Back in the morning – Hopefully.
Arrived and to the day one. Checked the taps and stove, then took the waste bags for me.
I’m hoping that a supply of a new , or even a week’s supply, will arrive today. Single-use only the night catheters, the day ones for seven days, I think. But it’s 17:15 hours already. Maybe one or some has gone to the Meridian office and will be brought by a night carer to fit for me? My fingers are crossed on that!
A prayer to get the last week’s two bags of laundry done as well. A talk with Mr G about the possibility of getting the bleeding and pain stopped from . My fingers are crossed on that one as well!
The immediate concern is over my Kryptonite – Sleep! Two hours was all I got last night – and no chance of catching up on it presented itself today. Dependent on whether or not I can get a or not is vital! If perchance, one doesn’t arrive (Albeit the chances are it will), I’m going to be in dire straits, up the creek without a paddle, up a gum tree, in the soup, harassed, a bag of nerves, and a very tired & frustrated old chap!
And to think, when I met the doctor yesterday to copy for the DNR option, she asked if I’d sooner die at home or in a hospital? If she knew about the mysteries of Woodthorpe Court, with the ghosts, wraiths, spectres, cacodemons, apparitions, and other grotesqueries that haunt the hallways and lobbies, searching for Inchcock; to curse with bad luck, create ambiguities, abstrucities, perplexities, misfortunes and botherations, to scare. worry and confuse me; she’d not have asked me in the first place. Hehehe!
Anyroad, another getting nothing done day here in Del Trotter Towers flats. Fair enough, there was the usual bleeding, confusionalitis, frustrations and possibly an increase in moments of self-loathing. But I’m too tired to go into them at this moment. Here is the pathetic Inchie Today Diary.
Misty morning
Computer problems
No idea why I took these two?
Ah, fancy that… The Famously Crap Internet is down…
Not weeing much?
20:20hrs now. Tired. I’ve put a meal in the heated oven. Worried about getting a Hopefully, it will come. And some really needed catch-up sleep.
Back later. Likely in the morning. Unless I have to stay awake… Humph!
Late Morning Update
Arrived, unfortunately, without any of the bags, so another sleep-depriving night to get through. Still, as it happened, it worked out well tonight. (It was a jumping awake every few minutes session and each time I checked on the . I emptied it only three times.)
Got the medications sorted, and we had a little laugh and nattering session. Shame about the lack of a night bag, though. But it’s not Richard’s fault. He did his best. As I mentioned above, it worked out okay as it happens. I think the storage in the bladder caused the bleeding in the urine again. I reheated the meal and made it crusty line top. Mmm!
♫ Food, Glorious Food ♫
A Spiffing ready-made meal. Potatoes, lardons, with BBQ sauces and some Milk Roll bread. I dropped the flipping pot of soya lemon yoghourt, and it landed in the waste bin and burst open. I just covered it with kitchen towels. Fell in the right place?
Got the dishes washed, and I took this picture of the evening view.Not a good one, but still.
Having got to kip so late last night, I resisted getting up every time the jumping awake occurred… but when I needed to get up… Zzzz! Thus, it was gone at 07:00hrs when I rose, and that was reluctantly. The first thing needed was to take off the . Which was containing some urine that looked like there might be some blood in it, judging by the colour. However, my having protanopia (Colour-Blindness to reds), you can decide for me, please.
Then I detached the , and emptied and packed it up for disposal. And the need for the arose. So, I meandered to the wet room.
I found a spoon used last night in the dressing gown pocket. How and why it was in there… I don’t know. But it was. An uncomfortably messy, Trotsky Terence-controlled, gooey splattery session again. still, cleaning it up was not as painful as usual.
I went into the kitchenette and got the kettle on.
Taking this photo while waiting for the kettle to boil. Before it did, I had to nip back again for more activities. , as it was filling up a bit urgently.
With it being such a small day bag, the smallest ever used; I was concerned that if I failed to check it, an could well happen, and the overfilled bag may burst?
The Ocado order I believed I’d slotted for next Tuesday – arrived! I am!
I got a call from Meridian’s Tina, asking me to ask if the Urology nurse arrived for her to call Tina. I said I would, and I noted it on the pad.
But it was a treat that I will still eat! Hahaha!
. I’m so glad I emptied the part filled now. The bag was really heavy and stretched.
The Urology Nurse arrived. I told her of the terrible pains and bleeding I was having from Little Inchie.She took a look and was surprised at the amount of blood and puss. She set about cleaning it up. Then adjusted the tubing and clips on the for me. Ah, so much less painful now! I thanked her. I assumed she had brought some new s for me. She reminded me to keep drinking and then ran Tina. Who came up to talk to the nurse. I could not hear what they were speaking about, though. But I assumed it was about the supply of the bags. The nurse departed with my thanks. Tina made me a mug of tea. Then she departed with my thanks.
I took this picture and then carried on doing yesterday’s blog.
As the night began to fall…
I took this photo.
arrived. Gave me the evening medications, and we had a little natter and laugh.
Back on the computing lark.
I thought I heard knocking on the door and found on the floor underneath the letterbox some Ibuprofen and Paracetamol. I think they were from Jenny. I must ring to thank her.
Arrived, theoretically, to attach the to the … But she discovered that we had no night pouches that we could use!!! I had no choice other than accept it and stay up awake all night. I believe there is no way the day bag is big enough to cope with all the night wee-weeing without bursting. Can I stay awake, though? This is going to be an unwanted stressful struggle I could do without!
Can I ever be free of worries? I suppose not?
Evening night shot from the kitchen window.
With staying up late, I’d lost any sense of time. And thoughtlessly rang Jenny to thank her for the tablets she’s kindly posted through the letterbox for me earlier.
♫ Food, Glorious Food! ♫
Worra meal! Taste rating: 8/10
In mu efforts to stay awake and monitor the tiny day bag, I made many pots of tea, nibbled an unhealthy amount of Cheesy Curls and Vinegar flavoured Quavers, and even sat on the end of the £300, bought eight years ago from the second-hand shop, Harold Haemorrhoid testing, repugnantly beige-coloured, crumb containing, virus-breeding, acne-giving, rickety, none-working recliner, so if I did nod off, hate jolt of slipping off the chair should wake me. It didn’t work!
I fell asleep; I’d estimate at 04:00hrs. Woke up at 06:00hrs, and I had to empty the tiny catheter bag.
Pandemonium! Everything delaying, interfering and stopping things from getting done. Hence the worst Diary ever. I did get the top bit done, though. And that took until 13:00hrs! Sorry!
The Catheter tubing was causing bleeding again from little Inchies fungal lesion. The Mystery stabbing pains have persisted, wearing me down
Fait dollop of wee in the night catheter.
Terrible morning view photo.
The light bulb needed changing.
I couldn’t get up the step ladder…
Tall Carer assisted!
Ah, that’s better. Thank you.
Carer Richard’s donated minder whiteboard.
No lift for Monday is available.
The taxi, I suppose?
Cor, the little day catheter bag filled up quickly.
An hour later, again!
Then the wee-weeing stopped?
Evening meal, not bad.
Flavour Rating: 7/10.
Followed by a pot of porridge.
A drop of raspberry syrup was added.
Woken by Carer Carole-Anne.
Who gave the painkillers to me. And added the night bag to the catheter.
Earlier, Carer Kara tried to get me logged back onto Internet banking. It wouldn’t let us. She’d not got much time and will try again later. Bless ’em. ♥
Could I get back to sleep?
Well, no, not for ages. TSK!
Sorry not much on this blog.
Time is so precious…
But, all the medicationings…
Catheter changing and emptying…
Even getting dressed and washed is time-consuming nowadays.
Cooking with one hand and trying to use the walking stick…
The wearying Mystery Rib Pains…
And my wandering stubborn brain…
Fretting and worrying away…
